Natalulu

Feels like gallbladder attack, but no gallbladder

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I want everyone to learn from my horrible experience.

In November of 2011  I had my gallbladder removed. The surgeon had to do a partial because my gallbladder was in such bad shape.

 

I had recurring symptoms that were identical to the symptoms that I had before my gallbladder was removed.

 

I spent 3 weeks in St. David's North Austin Hospital, they could not help me.

 

It took a whole year but we finally found the problem.

 

The Surgeon left an almost 1/2 inch stone in my gallbladder remnant.

 

The Surgeon who finally helped me was Dr. Craig Fischer at Houston  Methodist.

 

If you are having the same symptoms as you did before you had your gallbladder removed, get to the biggest city and the best hospital and get an ERCP.

 

Nothing but an ERCP will do in this case....trust me, I have over half a million in medical costs.

 

I hope this helps at least one person.

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Wow!  I've been suffering from these same "mystery stomach pains" on and off for 17 years!   They started a couple months after having my gallbladder removed and I have at least 2-3 "attacks" per year.  It took 17 years for a  Gastroenterologist to explain to me that it might be trapped stones left over from gallbladder.  I have a MRCP coming up and have taken Bentyl to help with pain and spasms.  If anyone on here continues to have this pain, Bentyl is the only thing that has helped me in 17 years. I'm assuming it slows whatever contractions are taking place due to blocked bile duct.  It is very validating to see that I am not alone and that there is an actual syndrome.

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Are you currently taking omprezole?  I was having a variety of nasty pains and omprezole cured them for me...

 

ymmv

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I had my gall bladder removed on Jan 3rd of this year. My birthday  :( Was in the hospital in ICU for 5 or 6 days suffering with pancreatitis as well. Was in hospital not long ago for pancreatitis again. I get attacks that feel like gall bladder stones. After reading Cinwas link...I'm fairly certain this is the cause. I always get horrible pains that hit out of no where and last for a few hours. I guzzle gasx pills and chewables. Use pain pills * Sometimes those cause me terrible pain in my belly * also use heating pad. Getting scope done sometime in July. 

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Hello all its been a while! but alas I am back for a bad issue. I had my gallbladder removed in june 2013 by emergency, it was full of those lovely black stones. Now im having those same gallstone attacks again where it radiates to my back and i cry into a fetal position. It lasts for about 10-20 mins but they are excruciating. I feel like going to the ER for them but the pain goes away and I dont want to seem like im there just for pain meds. Im having an endoscopy this friday for an ulcer check up, Im not sure what to tell my gastro, whether he should admit me so I can have further testing done or just get my endo and have an ultrasound of that area at a later date. What do you think guys? The attacks are becoming more frequent ( like 4 in the last 3 weeks) instead of once a month.

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I'm scheduled to have my gallbladder removed on Thursday. After gastric bypass in august 2013 I was diagnosed with an Ulcer and was put on nexium for it. The Ulcer was not healing and o kept having these attacks of pain. Every time I went to ER they would give me mylanta and tell me follow up with GI. GI Dr would give me more nexium, tried carafate, gave me magic mouthwash for pain and some zantac. Also keep taking the mylanta. Last endoscopy showed Ulcer gone and they didn't know what it was. Last bout of pain I went to a different hospital and got a ct scan and it showed a hernia. Gallbladder was murky. I went to my bariatric surgeons with this info and they ordered an ultrasound which shows small stones. All my blood tests were normal. Since this has gone on so long they scheduled me to have my gallbladderremoved but they are not fixing the hernia at this time. I'm just hoping they got it right now.

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I had my gallbladder removed 4 years ago. I get this awful gut wrenching pain where my gallbladder use to be. It even wakes me up out of a dead sleep. I have went to the doctor and she gave me prilosec and said it was heartburn when I requested a specialist she said it wasn't nessicairy and ignored me. I can usually burp or pass gas to relieve some of the pain but it goes away after I eat a slice of bread or drink water. It doesn't happen all the time. It's a random thing and it feels worse than the actual gallbladder attacks.

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I had my gallbladder removed 4 years ago. I get this awful gut wrenching pain where my gallbladder use to be. It even wakes me up out of a dead sleep. I have went to the doctor and she gave me prilosec and said it was heartburn when I requested a specialist she said it wasn't nessicairy and ignored me. I can usually burp or pass gas to relieve some of the pain but it goes away after I eat a slice of bread or drink water. It doesn't happen all the time. It's a random thing and it feels worse than the actual gallbladder attacks.

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It sounds like an ulcer or gastritis. Either way you can take a zantac when the pain starts and that gives you immediate relief. I'd try to make an appointment with your bariatric Dr or a GI asap. They can give you some meds to try and heal it. It will only get worse if you ignore it. Go into the ER next attack. That's a quick way to get a GI appointment. Good luck

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It sounds like an ulcer or gastritis. Either way you can take a zantac when the pain starts and that gives you immediate relief. I'd try to make an appointment with your bariatric Dr or a GI asap. They can give you some meds to try and heal it. It will only get worse if you ignore it. Go into the ER next attack. That's a quick way to get a GI appointment. Good luck

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I'm glad to have found this thread. I have what I call fake gallbladder attacks during my past year. When I see my surgeon this summer I'll address it. Perhaps he'll have an ultrasound done.

http://www.thinnertimesforum.com/topic/103604-insides-hurt/

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This morning, after I had my attack of course, I literally Googled, "I'm having gallbladder pain, but I don't have my gallbladder anymore," and I found this! I'm not crazy anymore!

I had my gallbladder removed June 9th of this year and I started having these attacks again about a month or so after my surgery. At first I thought it might be a hernia since they told me to be aware of that, so I had an ultrasound and nothing was abnormal. Now I'm just confused. I have no idea what's going on and I literally felt like I was going crazy, until I found this forum. When I was diagnosed with my gallbladder problems I was also diagnosed with gastritis and currently have been taking prescribed Prilosec since then. My attacks mainly happen in the morning and last for a good 10-20 minutes, but it's just agonizing. Help! I have no idea what it could be and I would love to be able to go to my doctor with a list of things it possibly could be, but I think she'll look at me all crazy and laugh at me. :( At this point, I'm desperate.

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Kirstin, have you seen a gastroenterologist? My daughter has weird transient gastric attacks, different manifestation than yours, but puzzling, because there was no pattern for what would set it off. They found she has eosinopholic esophagitis, which is related to her food allergies.

The bottom line is you could have something related or completely unrelated to any prior surgery that you've had. And if it's puzzling, a doctor is the best person to help figure it out and figure out what to do about it.

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i am a 57 year old woman....had GB surgery in april of 2012....still have horrible pain in upper back between shoulder blades...having it right now....i take zantac daily....still use rolaids and gas-x often...the pain is so intense i get afraid i am having a heart attack....but when i burp the pain goes away....then comes back....this goes on for 1 to 4 hours....i just want the pain to stop.

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I'm so glad I found this page! I'm not sure how I came across this site, and I've never had a gastric bypass, but I'm glad I'm here none-the-less.

I'm 25 around 115 pounds and had my gallbladder out in 2012. It's been three years, and I'm pretty happy and healthy most of the time. Every once in a while I get these "Phantom" Gallbladder pains and they are excruciating! I had one today, and it'd been so long, I wasn't sure what was happening. I could hardly sit up straight, I had to hunch over and practice breathing. When I got sick back in 2012 I started having hot flashes all of the time and I was 22. They've never completely gone away. Today they came like a wave, one after another. I had sweaty palms, which has NEVER been a problem for me. I'm usually cold all of the time. My problems started after I lived in Taiwan for about 9 months. I think it probably had a lot to do with all the oily food there. I also never had gallstones. They did all the tests, but they came back clean. However when I had my surgery they said that my gallbladder looked like it had belonged to a 65 year old woman.

I immediately started thinking over what I'd eaten in the last 24 hours. I couldn't think of anything out of the ordinary. (I would like to make mention that the pain in my back by my shoulder blade has never gone away. It just builds up until it's extremely painful and I have to have someone rub it. A lot of times I'll also put icy hot on my back before I go to sleep, to help me sleep.) Then I remembered what it probably was. I had gone to a friend's house for breakfast, and she had made us toasted apples and told me to put some cream on top. I usually don't eat cream. I can eat ice cream if it's thin, like a shake, but I can't eat a lot of it, and I don't eat Cold Stones because of how creamy and thick it is. This little drizzle of pure cream is what made my body go crazy!

I came home and laid down while I drank some Coke. It helped me feel better, but the pain has lasted all day and I ended up with Diarrhea. I ate the cream at around 10am. The pain started out of nowhere at around 12:30pm. It's now 6:45pm and there is still a little bloating and radiating pain. 

I 100% believe in these Phantom Gallbladder attacks. I can usually eat whatever I want, but every once in a while if I'm not careful, they come on fast and strong. Usually this happens if I've eaten something with a lot of oil or cream. They happened a lot right after my surgery, but now it happens maybe 3 times a year tops. I wish someone would do more research on this topic.

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My phantom attacks have not returned in months.  I do recall one attack while camping. I added some half & half to dilute some irish cream liquor. Perhaps it was fat content related. I don't recall my diet with the 2 other attacks, but it did have me on my side in agony.

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Remember wether you have phantom pain, syndrome , or stressed bile duct from a low carb diet, because they usually leave the gallbladder duct and take the gallbladder,  just be glad that diseased bacteria infested organ was removed because it could really cause worse issues by letting it stay there in your abdomen.  My gallbladder was removed after I lost 80 pounds on low carb diet because gallbladder produces bile that breaks down fat and that is what happens when you take all your carbs out.  But I overdid it!  Because I tore up my appendix as well!  If you start a low carb diet, start adding back the GOOD carbs after a couple of weeks! Adjust as needed. Never ever stay on no carb diet!

Edited by dlc86
Wrong spelling

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Phew, I thought I was going crazy. I had my gall bladder removed in February 2015, and just had my first "phantom attack," let me tell yah, it was the worst pain ever. I'm glad I had some prescription left over! I was incredibly nauseous, had pain in my upper abdomen, and lower back. It felt like gall bladder attacks all over again. :( It's slowly going away, but if it happens again I'll make sure to go into the ER.

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I know that everyone is different....but, here's my little story. If it helps one person, it'll be worth it. In October I had sever pain just below my sternum just in the center. Not radiating, only in one spot. A trip to local insta-care and redirected to ER where they had an ultra-sound machine it was discovered I had numerous stones in my gallbladder. Scheduled a visit to a surgeon and had it removed the following day.  Been careful and changed my diet for the most part, and started on supplements to include bile replacement. In January I had another attack, only this time it was worse. It passed and life continued as normal. It happened again two days ago, the night before my appointment for routine physical. My very attentive doctor feels like I likely have an ulcer. It would not have been discovered after the ultrasound showed the stones, as they would not have felt the need for further testing. I will have an upper endoscopy to determine this for sure, and they will test for H. Pylori, which is a common cause for some kinds of ulcer. Meanwhile, I am supplementing with occasional Prilosec (wary of side affects), and a Standard Process product called Gastrex. May also try aloe Vera juice. I would urge anyone with the same pain as gallbladder once it's been removed to at least ask their doctor about the possibility of ulcer. I realize there are several other possible causes since the human body is such an intricate machine and we are all different and unique. It does make a lot of sense in my case, and my general practitioner says that he won't bet his house on it yet, but, feels pretty certain I have an ulcer.  Prayers for all your good health! I am 58 and discovering first hand that advancing in years is not for the weak! 

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I also have the same problem. Had gallbladder out several years ago and FINALLY had a CT Scan and they found stones in my bile duct. I'm having them removed soon! Keep you posted 

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I've had the same insistent "ghost" pain since my gallbladder removal 10/31/1997. I never followed up. Figured it was GERD, because I've had reflux issues. I never had wls. 

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