Aussie Bear

I'm going to change things up - Surgeon's visit UPDATE

Recommended Posts

On 2/16/2019 at 4:31 PM, Aussie Bear said:

It's definitely helping, but I don't think it's the complete solution. I'm certainly not having the same levels of inflammation issues.....eg, very little bloating.... I can wear my clothes most of the day now without them getting too tight, my joints feel better, thrush is almost resolved,  and my skin irritation is a LOT less but still around. My gyn thinks I may be allergic to a particular medication but I have to take it (fortunately only weekly at the moment but today's the day so dreading that). I had gained about 7lb before I started this routine and that's come off again with a couple of friends, so definitely happy with that. This is still all based on how I feel though rather than any test results. My gyn ran some bloods about a month ago and while everything he tested for was within range (for our pathology standards), he is concerned that some of my markers seem very low (eg, cholesterol and A1C), in Australia they have upper limits for these tests but no lower limits for some reason. Haha, who'd have though a couple of years ago that those could be a concern. I'm having the balance of my usual tests done before my next bariatric follow up in a month. I'll be interested to see what my ferretin levels are like then. My ferretin level has always been the marker of inflamation for me and over the past year has been 300-400% higher than it should be.

Hope you are feeling well.  I have been following to see how things are working for you.  I am particularly interested in the inflammation piece.  I have auto immune disease and so my inflammation levels always run high.  I stopped medications years ago due to the horrible side effects.  I am sugar free and know that my joints always feels better.  Interesting that your ferritin levels run so high and that his is a marker for inflammation for you.  

I know trying to be our on doctors sometimes is needed. After all, we know what makes us feel best.  I am sugar and grain free. I just feel physically better without them both.  I  had allergy testing years ago and told I was not allergic to anything.  I found this amusing as I almost died from an allergic reaction in my life.  They never found out what caused it.  The testing then came up with a few foods which I had eaten all my life.

I have thought of trying Keto but don't know at this point that I could get all the fat in.  Do you find it difficult?  I have read a lot about it and it does limit protein.   Has that been a problem for you?  Keep us posted,  

Share this post


Link to post
Share on other sites
9 hours ago, Kim M said:

Hope you are feeling well.  I have been following to see how things are working for you.  I am particularly interested in the inflammation piece.  I have auto immune disease and so my inflammation levels always run high.  I stopped medications years ago due to the horrible side effects.  I am sugar free and know that my joints always feels better.  Interesting that your ferritin levels run so high and that his is a marker for inflammation for you.  

I know trying to be our on doctors sometimes is needed. After all, we know what makes us feel best.  I am sugar and grain free. I just feel physically better without them both.  I  had allergy testing years ago and told I was not allergic to anything.  I found this amusing as I almost died from an allergic reaction in my life.  They never found out what caused it.  The testing then came up with a few foods which I had eaten all my life.

I have thought of trying Keto but don't know at this point that I could get all the fat in.  Do you find it difficult?  I have read a lot about it and it does limit protein.   Has that been a problem for you?  Keep us posted,  

I still haven't had my iron studies testing yet....that'll be in about 2 weeks as my next bariatric appointment is in three weeks. I'm really keen to see if my ferritin levels have come down. I'm not following a keto diet....more a low carb, but in the "modified keto" realm, where macros are more 40:40:20. So pretty much double the protien and around half the fat of the true ketogenic diet. I do get in quite a bit of fat, with fat based snacks like nuts, milk and cheese three times a day. All meals and snacks have a fat and protien base. Carbs all come from fruit vegetables and dairy.

As for being my own doctor, both my family doctor and a couple of specialists have told me it's just as well I have been, because I've been the one that's discovered certain health issues they were pretty much writing off as insignificant.  The blood sugar issues are a prime example. My gynaecologist is the only one I've told about the grain free diet so far and he's okay with it, albeit surprised anyone could stick to it. I'm not expecting as positive a reaction from my family doctor, but hoping that my ferretin levels will have dropped significantly so I can justify my actions. I do know the subsequent extra weightloss will not go down well because he's told me I mustn't lose more weight. At least before I have to front him again I'll know what the bariatric surgeon has to say on the matter and he'll either back me or he won't, and he won't hold back his opinion when he writes to my family doctor.....if he's on my side then my family doctor won't really have a leg to stand on. You can probably tell that he scares me a bit.

Share this post


Link to post
Share on other sites

So I got my latest iron studies results yesterday and both my stored iron and ferritin levels are up yet again......no idea what's causing this as I don't take iron supplements, only really eat chicken and pork as far as meat goes, and rarely have green vegetables.  I did find out the mobile blood donation unit is in town next week so I'm going to try to book a sneaky appointment before I see my surgeon on Thursday. I need to lose some blood before my haemoglobin level rises above the level at which they'll take it. I've been turned down for donation before because they won't take it over 165.

I probably shouldn't say I don't know what causes it when Dr google tells me the first two causes to look for are hereditary hemochromatosis and hyperinsulinemia.... I have been diagnosed in the past with both. I'm going to have to have a serious discussion with the surgeon I think about actually doing some insulin testing. So far all they've been testing is blood sugars and using those results to presume what's happening with insulin levels. It's cheaper and easier to test blood sugar levels as opposed to insulin levels.

Edited by Aussie Bear

Share this post


Link to post
Share on other sites

Well, my sneaky attempt to donate some blood didn't go well. Now I'm barred until I get a Dr to fill in the paperwork for therapeutic venesection. Turns out my ferritin level was 2.5x the maximum acceptable level, so they wouldn't even be able to use it even if they did take it....they just bin it. And just to make me dislike them even more I went to the online link they sent me to give my doctor. The Dr puts in certain info on you  BMI, blood test results etc, and it spits our a list of the most likely causes of high ferritin for the patient. Mine came up with most likely reason being "malignancy", followed your a whole list of auto-immune diseases. While I'm not going to worry about it because it's far more likely the hemochromatosis gene....I'm clearly going to end up having a barrage of more tests and therefore Dr visits I'd rather not have to attend...or pay for!!!!

Share this post


Link to post
Share on other sites

So I had my two year follow up today....slightly early but have to fit in the surgeon's visiting schedule. A couple of things were forefront....firstly he said the high ferritin should have never been an issue so to forget it and just tell my usual doctor to get used to seeing those high numbers. He says it's all about the hemochromatosis gene I carry. He did tell me I'm not to donate blood though until  I completely stop losing weight. I'm okay with that given I now have to get a therapeutic venesection form done by my doctor and that requires lots of tests etc to be done to rule out all kinds of conditions that could make me an ineligible donor....things like Hep B&C, and nearly every autoimmune disorder under the sun. 

The second issue was the intense abdominal pain I sometimes experience.... This wasn't as easy....he suspects it's a bowel kink. He wasn't impressed I'd been riding these episodes out without going to ER. At least he has now given me some parameters for that, and had the ER surgical registrar note them clearly on my file along with his concerns. That way they won't mess about with me if I end up going to ER for those intense cramps....the registrar will just get called in immediately and that should trigger the call to the surgeon. He has told me that if he is correct, that will necessitate further surgery....so it's just a wait and see deal for now...I have to go back in three months, if not to ER before then.

Share this post


Link to post
Share on other sites

Good thoughts that won't be needed!!  Congrats on two years. 

Share this post


Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

Loading...