Nana Trish

Finally had my MRI and testing done

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I was FINALLY able to get in to see my spine doctor last week. It takes absolutely for ever to get in to see some of the specialists in my area. I can't remember how much I've told you all about what's going on, so if I'm repeating anything, I apologize in advance. 

I have been suffering with peripheral neuropathy for several months now. The past 3 months have been really severe. I saw my primary care doc about 2 months ago (?) I think, and he ordered a head CT to rule out anything emergent with my brain. That was normal. He then referred me back to my spine doctor, who I had to see anyway, to get my lumbar stenosis reevaluated before any physical therapy can be ordered for my knees. My spine doc and primary care doc both thought it was most likely caused by cervical spinal stenosis (new diagnosis), so spine doc ordered MRI's for my cervical and lumbar spine, without contrast, as well as scoliosis x-rays and flex test x-rays. I had the testing done on Thursday. The MRI of the lumbar spine shows progression of my previously diagnosed stenosis, as well as the arthritis, but no new bulging or herniated discs. The cervical MRI though...ugh. I have cervical stenosis at the C3/C4 and C4/C5 levels, greatly progressed arthritis and lesions on the C2/C3 and C3/C4 levels and possibly at C5/C6. I have to go back for another cervical MRI with contrast, because now there is some concern that MS is involved. I do NOT have an MS diagnosis at this point, but spine doc is concerned. I already have a neuro appointment scheduled for mid October...again, it takes months to get in to see the specialists. 

I have been having a lot of difficulty with the numbness in my fingers, face, and mouth...and a lot of trouble swallowing. I haven't been able to spend too much time typing, as I go numb pretty quick, especially when I look down at my phone. I'm using the computer today in the hopes that I could at least log on here and let you guys know whats been going on. I can really use some prayers, guys. Prayers that there is SOMETHING they can do to at least ease this pain and numbness...and big prayers that I'm not looking at an MS diagnosis. 

Believe it or not, I've been pretty good at keeping my weight steady. I've had a few slip ups with my diet, but nothing major. I have not, however, been getting even close to the amount of water I need everyday, and I've really been slacking on my vitamins, calcium, etc. But my stress level has been off the charts, and I'm finding it really hard getting by without being able to come here everyday. I'm hoping to get some relief soon so typing isn't so painful, because I need you guys. 

I hope you all are doing really well, and I'm going to try and get caught up on what's been going on with you all as much as possible today. :wub:

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Hugs girl!  (Softly).  Prayers!  Hang in there!  And GET your VITAMINS and MINERALS in!  You don’t need those problems on top of everything!  

Lois

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4 minutes ago, Cheesehead said:

Hugs girl!  (Softly).  Prayers!  Hang in there!  And GET your VITAMINS and MINERALS in!  You don’t need those problems on top of everything!  

Lois

Thank you for the hugs and prayers, @Cheesehead!! I know...I've GOT to start making sure to swallow all of the pills I'm supposed to be swallowing!! You're very right, I certainly don't need those problems too!

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One of these days you're going to get a break Trish.

Being a very much half-full glass type of gal, I'm thankful that you've had WLS and are managing your weight well because regardless of the outcome, you're physically in a far better position to handle the crap that life is throwing at you right now.

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2 hours ago, Nana Trish said:

I haven't been able to spend too much time typing, as I go numb pretty quick, especially when I look down at my phone. 

Trish, that is actually a good sign, as that is a physical thing, not a neurological thing.  I have herniations in my cervical discs from a prior car accident and I occasionally have those issues also.  Consistently taking an anti inflammatory when I get flare ups really help, but I don’t take them anymore (just Tylenol).  But my arm/hand will go numb (not the whole thing, just parts, where ever that nerve that is being affected is leading to. So, let’s just assume it is physical (arthritis/stenosis) and not MS until after seeing your Neuro...no sense worrying about things that might not even be (easier said than done).  Anyway, you DO need support (missed you here), so please just come and visit when you’re down....and use your phone’s speech to text to leave us a short note and update :)

{{{HUGS}}}

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Big big hugzzz @Nana Trish!  You are in my prayers sweetie <3

 

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4 hours ago, cinwa said:

One of these days you're going to get a break Trish.

Being a very much half-full glass type of gal, I'm thankful that you've had WLS and are managing your weight well because regardless of the outcome, you're physically in a far better position to handle the crap that life is throwing at you right now.

I think I'm due for a break too, @cinwa ❤️❤️❤️

I'm also a half-full glass type of gal, and I agree with you whole heartedly. Nothing bad can come from being at a healthy weight, no matter what the outcome of this next round of tests provides. You are always my ever constant voice of reason!! I appreciate you more than you know :wub:

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4 hours ago, TammyP said:

Big big hugzzz @Nana Trish!  You are in my prayers sweetie <3

 

Thank you ever so much, @TammyP ❤️❤️❤️ Your prayers always mean so much to me!! I hope you're doing well, my friend!

 

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4 hours ago, CheeringCJ said:

Trish, that is actually a good sign, as that is a physical thing, not a neurological thing.  I have herniations in my cervical discs from a prior car accident and I occasionally have those issues also.  Consistently taking an anti inflammatory when I get flare ups really help, but I don’t take them anymore (just Tylenol).  But my arm/hand will go numb (not the whole thing, just parts, where ever that nerve that is being affected is leading to. So, let’s just assume it is physical (arthritis/stenosis) and not MS until after seeing your Neuro...no sense worrying about things that might not even be (easier said than done).  Anyway, you DO need support (missed you here), so please just come and visit when you’re down....and use your phone’s speech to text to leave us a short note and update :)

{{{HUGS}}}

@CheeringCJ, it's definitely a good sign that positional changes are causing my tingling and numbness. I don't believe, even if I do end up with an MS diagnosis, that these symptoms are being caused by anything other than stenosis related issues at this time. I've been dealing with disc/nerve/scoliosis/stenosis/arthritis issues in my back and neck for literally decades now...so luckily I'm well versed in their affects. I think, if MS is actually present, that is not currently the cause of my symptoms. I've trained my brain not to worry about these things until I know for sure there is something to worry about. But when have extra prayers ever hurt anyone? Lol :) Thank you so much for the hugs and support, my friend!! It all helps me greatly...mentally and emotionally. You all are priceless to me in that respect!! 

xoxo ❤️

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Love you, Punkin, and I've got everything crossed for a good outcome. So sorry you have to wait so long for the next appointment.

As others have said, try to do what's within your power to take care of yourself, like the vitamins, water, and protein. And try to rest when you can. 

So glad to hear from you; keep us posted when you can. PM me if you like. 

a-watercolor-graphic-of-a-heart-in-pinks-and-purples-special-crop-1024x864.jpg

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Big gentle hugs from me :wub:

I like @cinwa's glass half full thought that this is all a degree better now that you're at a healthy weight - I'm sure that will make anything you're dealing with a little physically easier. Let us know how you're doing. I miss your voice here.

 

giphy.gif

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17 minutes ago, Jen581791 said:

.......

giphy.gif

Is that not the most adorable thing!  You made my day Jen - thank you!

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@Nana Trish thanks for the update. Sorry you are going through this but it does  sound like a mechanical problem, not MS. <<<Empathy and support, good vibes are in the air for you.>>>

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8 minutes ago, BurgundyBoy said:

@Nana Trish thanks for the update. Sorry you are going through this but it does  sound like a mechanical problem, not MS. <<<Empathy and support, good vibes are in the air for you.>>>

Thank you for all the stuff, BB!! ❤️

It sounds like a mechanical problem to me too...if there is something more serious going on, it will (again) be a secondary finding. Very usual for me, lol. I’ll keep you all updated as I find out more about the situation. The good news is, through the lumbar MRI, it shows my kidney mass is still completely stable (yay!) but the adrenal gland mass is growing slightly. So.....I’m choosing to take things one day at a time, and eventually there has to be some kind of resolution to all of this, right? 

On a different topic, in case I can’t manage to stay on too long today, did I read that you are now in size 34 Chinos?? I must say, sir...very impressive!! Don’t shrink too much more, or we won’t be able to find you!! Congrats!!!

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2 hours ago, Jen581791 said:

Big gentle hugs from me :wub:

I like @cinwa's glass half full thought that this is all a degree better now that you're at a healthy weight - I'm sure that will make anything you're dealing with a little physically easier. Let us know how you're doing. I miss your voice here.

 

giphy.gif

Now THAT looks like a hug I can get on board with!! Thank you :wub:

My current weight, beyond a shadow of a doubt, definitely makes this all several degrees better. I’m more thankful every day that I made this decision to have WLS. Something as simple as fitting into the MRI machine with a LOT of room to spare (I know @Kio can relate to this) makes things so much easier...physically and mentally :) 

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2 hours ago, cinwa said:

Is that not the most adorable thing!  You made my day Jen - thank you!

It’s the sweetest thing, right @cinwa??

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6 hours ago, Carina said:

Love you, Punkin, and I've got everything crossed for a good outcome. So sorry you have to wait so long for the next appointment.

As others have said, try to do what's within your power to take care of yourself, like the vitamins, water, and protein. And try to rest when you can. 

So glad to hear from you; keep us posted when you can. PM me if you like. 

a-watercolor-graphic-of-a-heart-in-pinks-and-purples-special-crop-1024x864.jpg

Thank you, sweet pea!! Keep everything crossed for me a little while longer, please, lol!! It’s normal to have to wait a couple of months to get in to see some of the specialists in this network, but it’s worth it. The team (growing by the day, sighs) I have now seems pretty great, so it’s worth the wait to get things right the first time, instead of going literally a year or more with my old team before they finally decided that something was actually wrong. 

I will most definitely get strict with my vitamins, etc, and especially my water. Of all the things to get lazy with, someone with kidney issues on top of being a bariatric patient should not be letting the fluids slide!!

❤️❤️❤️

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15 hours ago, Nana Trish said:

@CheeringCJ, it's definitely a good sign that positional changes are causing my tingling and numbness. I don't believe, even if I do end up with an MS diagnosis, that these symptoms are being caused by anything other than stenosis related issues at this time. I've been dealing with disc/nerve/scoliosis/stenosis/arthritis issues in my back and neck for literally decades now...so luckily I'm well versed in their affects. I think, if MS is actually present, that is not currently the cause of my symptoms. I've trained my brain not to worry about these things until I know for sure there is something to worry about. But when have extra prayers ever hurt anyone? Lol :) Thank you so much for the hugs and support, my friend!! It all helps me greatly...mentally and emotionally. You all are priceless to me in that respect!! 

xoxo ❤️

Absolutely!  You have my prayers, girlfriend! :wub:

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1 minute ago, CheeringCJ said:

Absolutely!  You have my prayers, girlfriend! :wub:

:wub:❤️:wub:

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4 hours ago, Nana Trish said:

Now THAT looks like a hug I can get on board with!! Thank you :wub:

My current weight, beyond a shadow of a doubt, definitely makes this all several degrees better. I’m more thankful every day that I made this decision to have WLS. Something as simple as fitting into the MRI machine with a LOT of room to spare (I know @Kio can relate to this) makes things so much easier...physically and mentally :) 

I can TOTALLY relate.  I'm so sorry you're back in medical hell, Trish - but glad you are in such great health otherwise, to help you weather it.

(BTW, agree with the others that your symptoms seem pretty mechanical rather than neurological.  Also, doesn't MS tend to come on at an earlier age?  Average age is 34 according to the internet, with 50 at the very top of the range.  Which isn't to say there aren't outliers, but... with so much else going on, to be diagnosed with MS at 51 on top of it would seem a bit ... targeted.  Unless you've pissed off an Elder God somehow, I'm going to insist that you do NOT have MS on top of the rest of it!)

*hughughug* Sending you all the best thoughts, as always.  Keep us posted, okay?

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Prayers to you. Prayers for a better result and for pain relief. 

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9 minutes ago, Kio said:

I can TOTALLY relate.  I'm so sorry you're back in medical hell, Trish - but glad you are in such great health otherwise, to help you weather it.

(BTW, agree with the others that your symptoms seem pretty mechanical rather than neurological.  Also, doesn't MS tend to come on at an earlier age?  Average age is 34 according to the internet, with 50 at the very top of the range.  Which isn't to say there aren't outliers, but... with so much else going on, to be diagnosed with MS at 51 on top of it would seem a bit ... targeted.  Unless you've pissed off an Elder God somehow, I'm going to insist that you do NOT have MS on top of the rest of it!)

*hughughug* Sending you all the best thoughts, as always.  Keep us posted, okay?

You see, @Kio...THIS is why I love you!!!

I agree that the symptoms are pretty mechanical, no doubt. As for a late MS diagnosis, if I actually DID have it, it would not surprise me that it wasn’t diagnosed earlier. The last *”team”* of doctor’s I had, prior to the team that treats me now, missed something as ‘simple’ as high blood calcium levels...consistently...for more than 4 years. Which was being caused by hyperparathyroidism (and showed up on every CMP blood test I had for the entire 4 years prior to being diagnosed). It was causing my hair to fall out, my teeth to deteriorate, and a whole host of other issues. My bariatric surgeon was actually the one that diagnosed that. I showed him all of my blood work results from the past several years, and all he could do was shake his head. I had been labeled a hypochondriac by my prior doctors, on more than one occasion...until they actually took the time to test me and found the health issue. EVERY TIME. 

*Deep breath*

Sooo, although I’m praying that the lesions on my cervical spine seen on the MRI are not MS, I need to find out what they are. And at this point, my doc seems pretty anxious to find the cause as well. Like I said in an earlier post, I’m not stressing over whether or not it could be MS. I’ll worry about that when and if I’m diagnosed. But I’m not going to lay back and let it be. I’ve done that for way too many years. I went through this whole WLS program, lost all of my excess weight (plus some...yay me!) to get healthy. I want to be healthy all the way!!

I’m very passionate about this because I’ve spent so many years letting the medical professionals dictate how and when and where I will be treated and which symptoms I experience that they think are important and which ones aren’t, etc...time for me to take the wheel now. I was fairly certain I had cervical stenosis. I do. As for the lesions? Who knows right now. You can bet your skinny behind I’m gonna find out though  :wub:

Thank you SOO much for the hugs my friend!! I’ll definitely keep you posted. Going for another appt with my spine doc on Tuesday, so I will know more after that ❤️

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19 minutes ago, Anita62 said:

Prayers to you. Prayers for a better result and for pain relief. 

Thank you, @Anita62!! I’ll take all the prayers you’ve got!! ❤️

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Oh, Nana Trish, I'm so sorry to hear all this. Those MRI results are rough! With lesions on the spine, I understand how they can be concerned with MS, and I am crossing all my fingers and toes that this is not the case. I hope your neurology appointment helps you to find some relief! 

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1 hour ago, delilas said:

Oh, Nana Trish, I'm so sorry to hear all this. Those MRI results are rough! With lesions on the spine, I understand how they can be concerned with MS, and I am crossing all my fingers and toes that this is not the case. I hope your neurology appointment helps you to find some relief! 

(((((Hugs))))) @delilas!! ❤️❤️❤️

I understand their concern with the lesions as well. I’m hoping there is no MS present as well, but also hoping it’s nothing worse, given my history. I don’t get to see my neurologist until next month, but my next appointment with my spine doc is tomorrow afternoon. I’m hoping he can give me more info (since we have only spoken on the phone after my MRI). Anxious to get the next MRI scheduled. 

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