Esophagus Issues. Can't breathe after eating! 10 years post op RNY.

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Hello everyone reading this! Here are my stats, I am 37 years old, I had rn.y gastric bypass 10 years ago in 2008. Starting weight was just under 300 lb, lowest weight was 155 lb, I developed an autoimmune disease within that time frame that cause me to gain 60 lb, and after receiving the proper treatment protocol for my autoimmune disease, I lost the 60 pounds I regained.                     This Thread, unfortunately, is not about me being happy however. I am in absolute, living hell. 3 years post op, I had an overproduction of stomach acid, that gave me symptoms of horrible, aching, cramping pain in between my upper shoulder blades. I went back to my surgeon, explained my situation, and was prescribed Prilosec to take for the rest of my life. This was a Magic Bullet, and worked perfectly for the next four years. Now, here we are, and 3 years ago, this new saga began in my post-op gastric bypass world. For context purposes, I only eat small, healthy meals, such as cooked vegetables, lean protein, typically ground turkey, ground chicken, and very rarely ground beef, complex carbohydrates, such as sweet potatoes, or 3 tablespoons of brown rice. I do not do dairy, gluten, or soy, I do not drink carbonated beverages, never have, never will. My diet mainly consists of very lean protein sources, cooked vegetables, and a few complex carbohydrates. I am quite particular about what I eat. You will never find me eating bread, rarely find eating pasta or rice, all the carbohydrates I eat are for nutritional purposes only, primarily legumes, and complex carbohydrates.

3 years ago, after I would eat about 1 and 1/2 cups of food, I would have a slight, annoying, amount of pressure in my chest, where I felt as if I could not get a full breath. The sensation would last for about 10 minutes after the meal, and was very manageable and tolerable at the time. I was able to manage it, and it did not affect my life significantly, because I was still taking the Omeprazole, and would take Gas-X as needed for the occasional more significant feeling of not being able to get a full breath. God, I would do anything to have those days back. For the last 2 years, it has gotten progressively worse, every month it seems. And now, I am at the point where my quality of life is 1%. Literally. I am miserable, walking around all day long with this immense pressure on my chest, as if there is an elephant sitting on my chest. It begins with a sip of water in the morning taking my medications. I do not have the feeling that food or water gets stuck, known as achalasia, thank God. What I do have, is this immediate Sensation, that someone is sitting on my chest, or is it someone has blown up a balloon in the middle of my chest, or as if someone is holding onto my windpipe from the inside of my body, allowing me to never feel as if I can take a full, deep breath. I have been diagnosed with asthma, however, the pulmonologist says that the methacholine challenge I took, said very very slightly that I could have asthma. So, I take Advair daily to control the "asthma" symptoms. However, I am beginning to feel as if this is an esophagus issue, and not an asthma issue. I have seen several gastroenterologist, that have done every, single, evaluation procedure possible. Barium swallow, endoscopy with two dilation of the esophagus, CT scans of my abdomen, 24-hour esophageal manometry, ultrasounds, and even a colonoscopy. I have also been tested for h. Pylori twice, and was positive twice. I was treated with an antibiotic and antacid protocol both times to heal the H. Pylori. The medications my gastroenterologist have tried are as follows, Omeprazole, Protonix, Ranitidine, diltiazem, dicyclomine, hyoscyamine, amitriptyline, the gastric cocktail consisting of Lidocaine and Mylanta, Nexium, and anti-anxiety medicines and depression medicines such as sertraline, Celexa, Wellbutrin, and anxiety medicine such as Ativan, Valium, and Xanax. I am sad to say that none of them have worked. With my endoscopy, it did show that I had a small hiatal hernia, but no Barrett's esophagus, and no gastritis, or ulcers. It is to the point, that even as I am speaking into my cell phone's microphone to create this post, I am out of breath, and as I try to take a deep breath, I can only take about 40 per-cent of an inhalation. I feel like I am dying. I have constant heaviness in my chest, as if there is a balloon sitting in the middle of my chest, making it so tight that I cannot get a full inhalation. I have been to the emergency room 10 times, Urgent Care 10 times, I have switched gastroenterologist twice, seeing my primary for this numerous times, and even brought in pulmonology and Cardiology, to determine what the cause of this horrible pressure in my chest is. My gastroenterologist concluded that I have what is called functional, or hypersensitive esophagus. The only thing they are offering me now, is taking amitriptyline 50 mg per night. I have been doing so for one month, and I have not experienced any relief. My quality of life is completely gone. It is hard for me to get up and take a shower, or do anything even remotely physical and active. Because I always have this locked chest, where I feel as if I cannot take a full breath. Imagine walking around with an elephant sitting on your chest all day and all night. Has anyone else had the same experience, and if so, was there anything that was successful in treating it, or at least making it more manageable? I have had two large -scale dialations, and they did not seem to help the issue at all. This post is about hypersensitive esophagus, or functional esophagus... Please provide any recommendations, treatments, medications, or even alternative protocols that may have helped you if you also have functional or hypersensitive esophagus. Please, please, please, please, any suggestion will be helpful. I am miserable, and I cannot see myself continuing this existence with this constant heaviness and inability to breathe in my chest. I also feel as if I am aspirating food into my lungs. I have read about this phenomenon occurring. But ,according to all of the examinations I have had, barium swallow, CT scans with contrast, etc. they all say that aspiration is not an issue, and that anatomically, everything with my esophagus and my rny gastric bypass is perfect. This is a nerve issue I have been told by gastroenterology, hence the hypersensitive / functional esophagus diagnosis. Please leave your feedback, thoughts, questions, recommendations below. Thank you so much.


Edited by Calidyme

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