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Coachy71

NASH and Thrombocytopenia-(low platelets)

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Bummer news... Went in yesterday for my pre-op because my surgery was schedualed for March 20th. Diagnosed that I have NASH-cirrhosis of the liver and Thrombocytopenia (my blood doesn't clot normally) I go back in 3 weeks to meet with a liver guy and he will do a CT scan and ultrasound. Pretty nervous and disappointed right now. Anyone else have one or both of these.

I did ask my surgeon what the chances of me having surgery, ever and he said there was a 5-10% chance I would not have surgery. Surgeon seemed very bummed about having to break the news to me, which made me feel better but uneasy.

Thank you in advance!

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Oh man, I'm so sorry! That had to be disappointing and scary. Please keep us posted.

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I'm truly sorry Coachy71 - I can only imagine how disappointed you must be feeling but good that it was picked up when it was.  

Hopefully this is just a short bump in your plans.

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So sorry for you, Coachy. I have  few friends in my nutrition class that got bad news at preop blood work and have been delayed. I called the scheduler on Friday to see if I can have preop b/w done now rather than waiting to do it 6 days before surgery. The answer was no because they want it done just a few days ahead of time.

Hang in there. There were many times in the process that I thought the chance of surgery was over for me. Hopefully this is just another bump in the road. Try to remember that you do want to be healthy. Probably a very good thing that this was caught now.

Edited by Readytobeme

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I was lucky and was able to schedule my preop a month before my surgery due to the distance I needed to travel and having another commitment in that city at the time. If I'd had to have my pre-op later my surgery probably would have been delayed due to a nasty chest infection I had between then and the surgery. It really was touch and go right up until the day if I'd be able to shake it off. I'd also had an abdominal CT a few months earlier for another reason, so the surgeon was able to use that rather than waiting to have another one.

Good luck with the upcoming tests Coach. It sucks when these things rear their ugly heads during the run up to surgery, but better they deal with any potential issues now rather than find them once you're on the operating table. I sometimes feel like pre WLS we get the most thorough medical workout well ever get at any other time in our lives!!!

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Thanks for all the kind words of encouragement. I think the toughest part is the mental part because I had in my mind what I would look like in 3 months etc... Now it's the worrying on what is gong onside inside my body.

Again, much appreciated on the support. Life is good and just have to keep on keeping on!

 

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On 3/12/2018 at 12:27 PM, Coachy71 said:

Thanks for all the kind words of encouragement. I think the toughest part is the mental part because I had in my mind what I would look like in 3 months etc... Now it's the worrying on what is gong onside inside my body.

Again, much appreciated on the support. Life is good and just have to keep on keeping on!

 

Coach good to know before you are in the operating room. Here's hoping you can still have the surgery. Sounds like you still have a 90-95% shot at it. 

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11 minutes ago, BurgundyBoy said:

Coach good to know before you are in the operating room. Here's hoping you can still have the surgery. Sounds like you still have a 90-95% shot at it. 

This is what I am thinking too. How many times a similar scenario played out with me and I just knew there would be no surgery for me. I think that his surgery will indeed happen although a bit delayed.

Edited by Readytobeme

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I got some good news today...I think. I went back and met with a liver doctor 2 weeks ago. They wanted to do some further tests of my liver. The problem was that I can't get an appointment for 4 weeks so I was becoming a little impatient. I messaged the Dr. today and got a response by one of his colleagues. She said that my liver enzymes are now in the normal category. They also did a fibroscan on my liver that showed it had some damage but did not have cirrhosis. The Dr. is out til next week and booked until my next appointment and she said she would put me on a list if there was a cancellation. They will want to do a ultra sound of my liver at the next appointment and hopefully I'll get good news moving forward with weight loss surgery. I haven't had too much good news, so I'm grabbing on to this for a little bit!

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3 minutes ago, Coachy71 said:

I got some good news today...I think. I went back and met with a liver doctor 2 weeks ago. They wanted to do some further tests of my liver. The problem was that I can't get an appointment for 4 weeks so I was becoming a little impatient. I messaged the Dr. today and got a response by one of his colleagues. She said that my liver enzymes are now in the normal category. They also did a fibroscan on my liver that showed it had some damage but did not have cirrhosis. The Dr. is out til next week and booked until my next appointment and she said she would put me on a list if there was a cancellation. They will want to do a ultra sound of my liver at the next appointment and hopefully I'll get good news moving forward with weight loss surgery. I haven't had too much good news, so I'm grabbing on to this for a little bit!

Well, this all does sound positive. Much better than having higher liver enzymes or having cirrhosis! Good for you! 

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Fingers crossed!  Maybe just a bump I need the road..  

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That's a great update!

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5 hours ago, Coachy71 said:

I got some good news today...I think. I went back and met with a liver doctor 2 weeks ago. They wanted to do some further tests of my liver. The problem was that I can't get an appointment for 4 weeks so I was becoming a little impatient. I messaged the Dr. today and got a response by one of his colleagues. She said that my liver enzymes are now in the normal category. They also did a fibroscan on my liver that showed it had some damage but did not have cirrhosis. The Dr. is out til next week and booked until my next appointment and she said she would put me on a list if there was a cancellation. They will want to do a ultra sound of my liver at the next appointment and hopefully I'll get good news moving forward with weight loss surgery. I haven't had too much good news, so I'm grabbing on to this for a little bit!

That sounds like great news! I will continue to send positive vibes your way. Please keep us updated.

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Well there hasn't been any changes. I thought I may hear from the liver doctor but have not. I am throwing around the idea of contacting my surgeon to ask some hypothetical questions about the chances of me getting surgery in May if everything checks out.

My insurance starts over July 1 and we have a Disney vacation planned July 5th. I really had my mind made that I would weigh a lot less for the vacation so that I could enjoy the plane trip and rides more. 

This waiting game is the hardest!

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Don't be afraid to be a little pushy about it. 

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