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I have had GERD well managed with one PPI in the am.  For the last month the GERD has become increasingly worse.  It is nothing I am eating.  Same basic food.  It got so bad last night it woke me from my sleep and I have been up since 2 am with a belly full of acid.  I have a call into a gastro.  My question is has this happened to anyone this far out.  I could barely drink water today.  I am not asking for medical advice.   I thought someone might have had the same experience and could share any information about their experience.  TIA

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17 minutes ago, Kim M said:

I have had GERD well managed with one PPI in the am.  For the last month the GERD has become increasingly worse.  It is nothing I am eating.  Same basic food.  It got so bad last night it woke me from my sleep and I have been up since 2 am with a belly full of acid.  I have a call into a gastro.  My question is has this happened to anyone this far out.  I could barely drink water today.  I am not asking for medical advice.   I thought someone might have had the same experience and could share any information about their experience.  TIA

I have GERD and am on dexilant.  I am not far out like you but do have a question for you. How long have you been taking your PPI? Is your GERD caused from having the sleeve?

I am sorry you are having these problems and hope you get some answers.

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I started getting GERD about 25 years out from my original surgery. An endoscopy that included a dilation sorted the problem for about a year. My original surgery predated the VSG and predated the advanced staplers they now use, so doubt it is very helpful really. I had no option in the end but to have a revision due to staple line dehiscence. However it is highly unlikely that would be your problem.

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On 2/1/2018 at 10:20 PM, tracyringo said:

I have GERD and am on dexilant.  I am not far out like you but do have a question for you. How long have you been taking your PPI? Is your GERD caused from having the sleeve?

I am sorry you are having these problems and hope you get some answers.

Thanks for responding. I was on a PPI well before surgery.  I estimate about 10 years total.  I know GERD can become worse with the sleeve but I was rolling along just fine until now.  I called and asked to be switched to another PPI but I have to see the gastroenterologist first.  He told me to take the PPI twice a day and if that doesn't help another over the counter medication until I see him on Thurs.  

So I am currently taking 4 PPI each day with a bit of relief.  I have burning in the back of my throat and the other day my throat was sore.  I am hoping changing to another PPI will help.  I have not heard of dexllant but will look it up.  My son-in-law has severe GERD and they have suggested surgery to correct the problem.  He was switched to protonix and is doing well.  He has not had WLS.  

I have a client who had to have a revision to Bypass as they were concerned she would get esophageal cancer.  She is now symptom free.  

I am hoping that a change in PPI will be all I need.  

Thx again for your response. 

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On 2/2/2018 at 3:22 AM, Aussie H said:

I started getting GERD about 25 years out from my original surgery. An endoscopy that included a dilation sorted the problem for about a year. My original surgery predated the VSG and predated the advanced staplers they now use, so doubt it is very helpful really. I had no option in the end but to have a revision due to staple line dehiscence. However it is highly unlikely that would be your problem.

Sorry you had to go through this.  Glad you are doing better.  Which surgery did you have?

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@Kim M Please keep us posted on what happens.

My surgeons office called and said the insurance wants me to go down to 1 pill a day. I take 1 at night and 1 in the morning and have already tried to go down to 1 pill. She said she would send a letter to my insurance company. When I tried going to 1 I had acid and burning in my throat and mine comes up when I am sleeping !!   Not the way to be woken up in the night for sure.

Hope you are able to find a medicine that will work for you.

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21 minutes ago, Kim M said:

Sorry you had to go through this.  Glad you are doing better.  Which surgery did you have?

I had the original stomach stapling procedure, known as Gastroplasty, where a horizontal staple line was placed across the stomach with a gap (aka stoma) left for food to pass through. This was revised to a full RNY gastric bypass with a gastrectomy of the old staple line and scar tissue between the old and new pouch staple lines.

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Thank you everyone for sharing your experiences.  I suppose when we altered our bodies there is always a chance of some complications.  Hoping a change in medication will bring me back to baseline.  Other than this, I have had no complications at all with the VSG.  

Still working on losing the regain.  I am down 30 pounds but have stalled the last month.  Well another 30 to go.  I have new knees and want them to last a very long time. Losing the weight will be less wear and tear on them.  

I will let you all know the outcome of my visit tomorrow.  Thanks again for the support.  

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On 2/5/2018 at 4:10 PM, tracyringo said:

@Kim M Please keep us posted on what happens.

My surgeons office called and said the insurance wants me to go down to 1 pill a day. I take 1 at night and 1 in the morning and have already tried to go down to 1 pill. She said she would send a letter to my insurance company. When I tried going to 1 I had acid and burning in my throat and mine comes up when I am sleeping !!   Not the way to be woken up in the night for sure.

Hope you are able to find a medicine that will work for you.

I have a feeling my insurance will only be willing to pay for one dose a day as this is the standard.  It is very frustrating as our doctors know what we need, but the insurance company is dictating what they will provide.  

Sorry for the pain you are going through.  That is exactly what happened to me the other night. It is awful.  My belly was bloated with acid.  Horrible!!

Hope you find some relief.  

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On 2/5/2018 at 4:21 PM, Aussie H said:

I had the original stomach stapling procedure, known as Gastroplasty, where a horizontal staple line was placed across the stomach with a gap (aka stoma) left for food to pass through. This was revised to a full RNY gastric bypass with a gastrectomy of the old staple line and scar tissue between the old and new pouch staple lines.

I remember that surgery.  Someone I know had it.  So happy the revision to RNY has worked for you. 

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3 hours ago, Kim M said:

I remember that surgery.  Someone I know had it.  So happy the revision to RNY has worked for you. 

Careful there Kim.....you're showing your age. Haha!!!!

Not many medical personnel even know about that surgery now, it doesn't even rate a mention in medical schools they tell me. I've had numerous general surgical personnel quiz me about it since it was added to my electronic records. What I've since found out was that surgery had a 10% mortality rate....plus it didn't work either. Most people who had that surgery had some form of revisional surgery within 5 years.  I was definitely the dinosaur in the OR the day my eventual surgeon shoved an endoscope down my throat the first time. Was very surprised to hear that my pouch hadn't really stretched much in all those years....mind you the stapleline had burst open....but at least the stomach tissue was still in good nick because that now makes up my new pouch.

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23 hours ago, Aussie H said:

Careful there Kim.....you're showing your age. Haha!!!!

Not many medical personnel even know about that surgery now, it doesn't even rate a mention in medical schools they tell me. I've had numerous general surgical personnel quiz me about it since it was added to my electronic records. What I've since found out was that surgery had a 10% mortality rate....plus it didn't work either. Most people who had that surgery had some form of revisional surgery within 5 years.  I was definitely the dinosaur in the OR the day my eventual surgeon shoved an endoscope down my throat the first time. Was very surprised to hear that my pouch hadn't really stretched much in all those years....mind you the stapleline had burst open....but at least the stomach tissue was still in good nick because that now makes up my new pouch.

So glad you did not suffer worse side effects.  A torn staple line is enough.  So glad you were able to get the revision and have been successful.  thx for sharing.  We have come a long way.  

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An update.  I went to the gastroenterologist today.  He wants to do an endoscopy as something has changed.  I explained I could not take a day off of work as I had just returned after a 4 month medical leave.  In the meantime he prescribed dexilant but my insurance company would not cover the medication and the cost was $346 for a 30 day supply.  Instead I was given Protonix and Pepcid.  Hoping for some improvement.  Another awful night with the pain waking me up and then trying to fall back to sleep in the chair.  I have been up since 3 am and am exhausted.  Stomach still on fire.  

I guess I am baffled by the sudden change.  It was nothing I did differently.  In fact I lost 30 pounds which usually helps.  Hoping for the best. 

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I expected they would order an endoscopy because that's really the only way for them to see what is going on. Hope you can manage time off soon to get it done. None of the reflux meds did anything to relieve my symptoms and I was taking way more than normally prescribed. The real kick for me to take action was when the reflux started coming out through my nose. Not only painful but impossible to get rid of the taste (for want of a better word) when it is in the nasal passages. Please don't wait too long to get the answers.

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Oh how awful.  So glad you are  no longer suffering.  I picked up 2 new meds today.  I will start them tomorrow.  Hoping for the best

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Hope this helps Kim!  

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Hope you get some relief now Kim. I have a very strong feeling I'll be scheduled for another endoscopy when I have my next post-op appointment in a fortnight. I just hope if that's the case he'll get it over and done with during that week or I could be waiting a while until his next visit.

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Another update.  I was hospitalized for 3 days for sepsis, another story, but in doing the CT scan  an accidental finding of a moderately large hiatal hernia.  Could be why the GERD has suddenly gotten worse.  It is a bit strange that this should happen after losing 30 pounds and cutting back on portion size,  I might have had it for quite some time without symptoms.  After I take care of my current medical situation, I will schedule an appointment for the endoscopy.  Not sure if I should return to my surgeon as I have not seen him in 3 years.  It is tough getting old!!!

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1 hour ago, Kim M said:

  Not sure if I should return to my surgeon as I have not seen him in 3 years.  It is tough getting old!!!

The one thing my experience taught me was to always keep in contact with my bariatric surgeon. They are the ones that know your intestinal workings, and they know historically what likely complications they might be dealing with. Bariatric surgeons here start their move to bariatrics from a gastrointestinal surgeon education and then specialise in bariatrics. I first saw my bariatric surgeon as the visiting gastro at my local hospital. I know he is the go to guy for cholecystectomies, hernias, emergency appendectomies etc. I also know that at the major teaching hospital where he normally works, that he deals with many (if not all) gastro-intestinal cancer surgeries. That's enough for me to know I want him in my corner when the chips are down.

Good luck getting your issues sorted. While it certainly isn't great that you had to deal with sepsis, it is great that they found the hernia and you can now decide how to deal with it. I've been dealing with some intestinal issues myself for the last couple of months, but thankfully have a scheduled follow up with my surgeon on Monday week. I'm absolutely confident that he will get to the bottom of all the infections (and GI discomfort) I've been dealing with the last couple of months. The local doctors here have convinced me they are just clueless.

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13 hours ago, Kim M said:

Another update.  I was hospitalized for 3 days for sepsis, another story, but in doing the CT scan  an accidental finding of a moderately large hiatal hernia.  Could be why the GERD has suddenly gotten worse.  It is a bit strange that this should happen after losing 30 pounds and cutting back on portion size,  I might have had it for quite some time without symptoms.  After I take care of my current medical situation, I will schedule an appointment for the endoscopy.  Not sure if I should return to my surgeon as I have not seen him in 3 years.  It is tough getting old!!!

I also have a hiatal hernia they found on a swallow test I had done. They did the scope after that and are going to leave it alone. Will they have to repair yours? How is your new meds working?

 

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I'm sorry you are going through this. I know how awful it feels to suffer from GERD. Before my rny I had severe GERD that led to Barrett's Esophagus and was on 4 pills a day for it. I also had a hiatal hernia that they fixed during my rny. I feel blessed that I am off all medication for GERD and have no change to the Barrett's Esophagus. I hope they get things taken care of so you get some relief.

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I am going thru the same as you, I had the sleeve done 8yrs ago and before surgery I had very bad GERD I would wake up in the middle of the night choking on acid  which I inhaled into my windpipe.  But, After surgery it got better, but about 5 yrs later it started again,  And that is when I found out that the sleeve actually promotes acid reflux.  So 10 weeks ago I had the gastric bypass to help with reducing the acid producing cells in my stomach to find out that I have a moderately large hiatal hernia which I will possibly need another surgery to repair in the future.  Right now omeprazole is helping.  As I follow up with the doctor I will make updates.

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On 2/13/2018 at 7:15 PM, Aussie Bear said:

The one thing my experience taught me was to always keep in contact with my bariatric surgeon. They are the ones that know your intestinal workings, and they know historically what likely complications they might be dealing with. Bariatric surgeons here start their move to bariatrics from a gastrointestinal surgeon education and then specialise in bariatrics. I first saw my bariatric surgeon as the visiting gastro at my local hospital. I know he is the go to guy for cholecystectomies, hernias, emergency appendectomies etc. I also know that at the major teaching hospital where he normally works, that he deals with many (if not all) gastro-intestinal cancer surgeries. That's enough for me to know I want him in my corner when the chips are down.

Good luck getting your issues sorted. While it certainly isn't great that you had to deal with sepsis, it is great that they found the hernia and you can now decide how to deal with it. I've been dealing with some intestinal issues myself for the last couple of months, but thankfully have a scheduled follow up with my surgeon on Monday week. I'm absolutely confident that he will get to the bottom of all the infections (and GI discomfort) I've been dealing with the last couple of months. The local doctors here have convinced me they are just clueless.

I hear you about saying in touch with the surgeon.  I would see his NP who would weigh me and then he would come in ask how I was doing check my weight.  Thats it.  My endocrinologist is doing all my vitamin testing so I didn't see the need to return.  

I do remember him saying that if there are any problems to return to him as he is the one that knows what my insides look like. I went ahead and made an appointment with a gastro that I had used for a colonoscopy. I was able to get an appointment for next Friday.  This would not happen with my surgeon. He is in the city 4 days per week and only at the location I had my surgery on Thurs.  If there is a surgery to be done, I will return to him. 

First day back at work and I am beat.  Thank goodness I have the weekend to rest up.  

The meds do not seem to be doing much.  Although it is hard to tell as I am on 1700 mg of antibiotics a day.  The GERD is so bad it sounded as if I had laryngitis yesterday.  Not as bad today as I didn't take the antibiotic last night.  

Thank you for sharing your experience.  I so appreciate the support.  I was having such a good experience up to this point. 

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On 2/14/2018 at 7:07 AM, tracyringo said:

I also have a hiatal hernia they found on a swallow test I had done. They did the scope after that and are going to leave it alone. Will they have to repair yours? How is your new meds working?

 

Not sure if I will need a repair.  I am having a endoscope next Friday and will know more.   Hard to say about the meds as I am on high does of antibiotics that I believe would bother anyones stomach.  

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On 2/14/2018 at 9:19 AM, Chefman77 said:

I'm sorry you are going through this. I know how awful it feels to suffer from GERD. Before my rny I had severe GERD that led to Barrett's Esophagus and was on 4 pills a day for it. I also had a hiatal hernia that they fixed during my rny. I feel blessed that I am off all medication for GERD and have no change to the Barrett's Esophagus. I hope they get things taken care of so you get some relief.

Thanks so much for your kind words.  One of the things they mentioned is that will be checking for Barrett's Esophagus.  Do you have revision surgery from the sleeve?  

So glad you are doing well.  

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