Moonshadow

Looking for someone who had bypass reversal

44 posts in this topic

Hi there, I am in need of some serious information from someone who has had gastric bypass then had it reversed. In particular, I am looking for someone who had it reversed because of severe nausea/vomiting. I need to know if after the reversal the nausea went away and if there are still vitamin deficiency issues with it.

I have done everything to make this nausea/vomiting better. 2 Endoscopies, ct scans, Fenzian treatments, nausea medicines, and I will be trying acupuncture this coming week. I am down over 70 pounds in a little over 2 months and am 17 pounds away from my goal. I can only keep liquids down and when I try to move up to things like applesauce they come back up and I have pain. The nausea is 24 hours a day with dry heaves the worst in the morning. So far the only blood work that is down is Thiamin and Potassium. I got my Potassium up a little by drinking gatorade and they just gave me a Thiamin drip at my Endoscopy today. But I am worried that things will only get worse since I can't keep things down and am eating so little. I am still trying to work through this nausea, but this is really no way to live and if I keep loosing weight at this rate it will become very dangerous as well as the health risks of me not getting the nutrients I need. So if anyone has had the reversal or knows of someone that has, I would love to hear from them.

Thanks for reading my story.

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just relax I felt like crap for my first three months let it work dont try to much soon you will be able to eat anything you want just dont eat what you shouldent. It ant easy. It will work 3 months ant nothing in a life of 80 years.

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I have seen a couple stories on here about reversal. Sorry you are going through this, nausea and vomiting are no way to live. My sister inlaw was the same way for the first 3 months as well...nothing but nausea and vomiting but now she is doing great! Hope it subsides soon for you!

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I had my surgery 8 yrs ago and am having lots of complications! I am not able to eat anymore can only drink. They don't think they can repair my stomach and want to romove it! I am in so much pain 24/7.

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Still looking for someone who has had a reversal/revision to their gastric bypass. I appreciate the couple of people who responded. Unfortunately, this isn't a case of just a little nausea. I have undergone 3 endoscopies now with a stricture each time. I am now down 80 pounds in a little over 3 months which comes down to around 25 pounds a month. If this continues I will be under 100 pounds in 2 months. I have been trying everything to be able to eat solid foods including acupuncture. I have been deficient in Potassium and Thiamine and have been given Thiamine drips. I try to take my vitamins and eat, but most of the time it comes right back up... and sometimes its very painful. And no its not because I am eating wrong foods. I mainly eat soup broths with a few noodles or mushy potatoes. I have not given up on the surgery... yet, but I like to be informed. If by the end of this month, I am still loosing almost a pound a day I will need to seriously think about reversal/revision. That's why I want to find someone who has had this done. So I can ask some questions so I am informed. It's a stupid person who waits til too late to ask the questions. Unfortunately, it appears anyone who has had this done stops coming to these forums and I have tried searching other sites for answers too.

to obchargegirl - I am so sorry to hear you are in so much pain. I hope they can find a way to help you, but with what I have been through with Dr.s I suggest you make sure you get second and even third opinions. If it wasn't for a nurse advocate that is a friend of my sisters, I would still be vomitting 24 hours a day. My surgeon didn't think I needed an Endoscopy and it turns out I did. So don't be afraid to go elsewhere for advice. Good luck.

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wow that is horrible and I'm sorry for someone to say just let this work isn't helpful. I don't think they understood your post. Unfortunately I have no info for you but wanted to see how you were doing and to bump thread up maybe for others to get you info. I sure hope they figure this out for you soon.

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Hello,

I don't know how much help I can be but here is a quick version of my story.

I too suffered from severe nausea and vomiting. I had my surgery in May of 2010 and by November, I had lost over 140 pounds. I was checked into the hospital for dehydration and extremely low potassium multiple times. I had multiple ct scans, upper gis, and endoscopies. I had my gallbladder removed since it had stones, this did not solve the problem. I was prescribed zofran, reglan, and marinol for nausea. No medication helped.

Many "supporters" just told me to eat more and something would stay down. IT DID NOT!!!! I was to the point that I was not able to keep down even fluids. ALthough I did not recognize the seriousness of everything myself and I could not see how bad things had gotten, my family began to recognize issues. My skin became gray, I slept for all but about 1-2 hours a day. It was too much energy to even move. I had no need to urinate, I was vomiting only foam since nothing was in my system.

Dec. 17th of 2010 found me at a follow up appt with a bariatric surgeon that had been trying to help me since October. He took one look at me and said that he would be admitting me to the hospital. The only choice left for me was a reversal. At the hospital, they did bloodwork and inserted a PICC line. I was at the hospital through Dec. 21st. Although I had hoped to have the surgery my pre-abumin levels were too low (8 out of a minimum level of 20) and there was concern about surviving and healing from the surgery. My other nutritional levels were vitally low as well. I was sent home on TPN to stabilize and raise my levels. I felt 10x better on the TPN.

On January 5th, I had a reversal surgery. My surgeon was amazing and able to do it via lap instead of open. AT this time, I have had virtually no nausea and only a little bit of gagging. As I near the time that I can have pureed foods, my nerves are making me slightly nauseous but I believe it is purely psychological for me at this point. AFter vomiting everything for almost 7 months, I am afraid to try eating.

What I hope you get from this is don't let it continue too long!!! Push your doctors to help you find a cure and/or reverse you before you suffer long term effects. You MUST be an advocate for your health. In all my times being admitted to the hosp or atleast in the ER, they never did a full spectrum of blood work, they only check the electrolytes.

As I progress, I will post back with my recovery from the reversal.

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I had my rny reversed 2 years ago and it was THE best thing I have done since my nightmare with weight loss surgery began. I live in Colorado and had to fly to NY to have it done but it was sooooooooooooooo worth it.

no one should have to live with the issues that wls brought to me.

While I don't post much because basically it's the same story for me, had wls, got sick for 3.5 years, reversed wls, feel much much much better but because no one in the medical industry would LISTEN to me I still suffer from the neurological consiquences of wls.

Here's a link that helped me out

Arch Neurol -- The Neurological Complications of Bariatric Surgery, August 2004, Berger 61 (8): 1185

Moonshadow likes this

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Runtly,

I do hope your recovery is going well. It took my body about 4 months to accept food on a regular basis so don't get discouraged if it feels like you're not doing as well as you'd like. Listen to your body tho

Grace

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Have you had your Gallbladder checked? Or is it removed?

If not, I'd recomend gettin it checked, because serious nausea is a classic symptom of GallStones, which are extremely common among WLS patients, because they can be caused by rapid weight loss...and i would definetly consider 70 lbs in 2 months a lot!

Also, since your only 2 months out, your pouch is still sensitive, so it might be the foods you are experimenting with...what kind of foods do you eat that cause this nausea?

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Update:

I really didn't think I was going to find anyone who has the reversal so I had given up on coming back. I'm glad I decided to check. To Runtly and OnaStarTrek I am so glad you both posted. Even though I don't wish complications on anyone, it's nice to know I am not alone. The article you linked Ona was very interesting. It's amazing how many things mentioned I am going through. To Kyra - not the gallbladder, I had that removed several years ago before the bypass.

My weight loss has finally slowed down. I am now 11 pounds BELOW my goal weight, but I did make my goal very conservative. I just wasn't expecting to be at that weight in only 4 months. I am no longer taking all the nausea meds/suppositories. Is the nausea completely gone? no, just manageable. I truly believe the last endoscopy done was the biggest factor in helping. It was my 3rd time and even 3rd doctor doing it. The difference was two things; one - he was able to fully dilate me to normal size, and two - he injected four spots around where I was constantly restricted with steroids. After this I was able to start to eat softer foods without throwing them up or extreme pain. I still can not eat most meats without the pain... chicken and beef products being the worst. I have been able to eat some meats that come from pig like pork, ham and sausage. The funny thing is those were on the don't eat list you get from you nutritionist I'm guessing because of possible high fat content. Personally, I'm just happy I can eat any kind of meat at all. I still have days where I can't get any meats down without extreme pain. Even something that the day before went down okay can cause me extreme pain and even come back up the next day. The meats must be extremely tender and basically dissolve in my mouth. I feel like a cow how long I chew my meats. If it's not breaking down, I spit it out so I don't get the pain. My main diet still is soups, but I have found a rice dish that goes down well most of the time.

As to vitamins, we are still keeping an eye on things. I am waiting right now for some levels to come back since they take up to 3 weeks for some of them to get reported back to my dr. My potassium as of right now is stable, but I really work at finding items that are high in potassium I can get down. Unfortunately, one of my favorite fruits bananas have still been trouble for me. And I am really missing salads and broccoli. I occasionally try to gnaw on one, but they usually cause my pain. I know the last time my vitamins came back besides the B1 or Thiamine being low, my vitamin A was now deficient. And my vitamin D levels were still in the okay range, but had dropped. One of the biggest problems I have now, is that I feel my IQ has dropped and I am sure that it is related to my vitamin levels. I have trouble remembering things or coming up with things. I tend to stutter trying to come up with the word I'm looking for or even what I was saying in the first place. For me this has been very frustrating especially when I am at the doctors, because I think of something I want to ask AFTER I leave the office.

The other main problem I am having now, is that my back pain has increased. In the link Ona provided it mentioned weakness and leg problems. I am so weak right now sometimes opening doors is a chore. I went to see back specialist and he said all my movements were 70% decreased range of motion. When they tried to raise my legs, they would feel like numbness and shock radiating down them. He had them do and MRI of my low back and it turns out I now have a tear in my L4-L5 area and leaking fluid. He believes this is most likely caused from all the sitting I have been doing since surgery and even before surgery. Any walking or even typical motions like cleaning the house cause me pain and severe headaches. I am seeing a physical therapist, but I am so inflamed we are just working on trying to get that down, which is hard since they want me on an anti-inflammatory and those all are NSAIDS which bypass patients are suppose to avoid since they can cause ulcers.

So at this time, I am still wishing I had not done the surgery. I am not attempting at this time to have it reversed...but it's still a possibility for the future. It will depend on whether my vitamin levels can stabilize and if I continue to progress with my eating. Though I am glad I am not dry heaving 24 hours a day anymore, the not knowing how much pain will I be in today when I eat is hard and I don't want to be dealing with that for the rest of my life. I am still giving it time and since my weight loss has slowed I do have more time.

Thanks again for the responses. I wish everyone the best in whatever troubles they are going through.

Mizmarycate likes this

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sorry i dont remember if I have ever responded to this posting but after 3.5 years of rny hell I had mine reversed. its been 2 years now since the reversal and its the BEST THING i couldhave ever done. if y ou want to email me please feel free.

[email protected]

Grace

Still looking for someone who has had a reversal/revision to their gastric bypass. I appreciate the couple of people who responded. Unfortunately, this isn't a case of just a little nausea. I have undergone 3 endoscopies now with a stricture each time. I am now down 80 pounds in a little over 3 months which comes down to around 25 pounds a month. If this continues I will be under 100 pounds in 2 months. I have been trying everything to be able to eat solid foods including acupuncture. I have been deficient in Potassium and Thiamine and have been given Thiamine drips. I try to take my vitamins and eat, but most of the time it comes right back up... and sometimes its very painful. And no its not because I am eating wrong foods. I mainly eat soup broths with a few noodles or mushy potatoes. I have not given up on the surgery... yet, but I like to be informed. If by the end of this month, I am still loosing almost a pound a day I will need to seriously think about reversal/revision. That's why I want to find someone who has had this done. So I can ask some questions so I am informed. It's a stupid person who waits til too late to ask the questions. Unfortunately, it appears anyone who has had this done stops coming to these forums and I have tried searching other sites for answers too.

to obchargegirl - I am so sorry to hear you are in so much pain. I hope they can find a way to help you, but with what I have been through with Dr.s I suggest you make sure you get second and even third opinions. If it wasn't for a nurse advocate that is a friend of my sisters, I would still be vomitting 24 hours a day. My surgeon didn't think I needed an Endoscopy and it turns out I did. So don't be afraid to go elsewhere for advice. Good luck.

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I am so very sorry that you are having these complications. I am four years post RNY and my wls journey has been nothing but a nightmare. I too am looking into revision. I wish you nothing but the best. I hope you find relief.

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Geez Moonshadow, Sorry I have not been on here much and didn't see your post until now.

I, too had four Stricture dilations before I was able to eat and basically could not eat any solid foods for about 6 months-threw up hundred of times even my protein shakes!

I also wanted a reversal cause throwing up everything, including what I drank was a real bummer to say the least-especially once the hunger pangs kicked in again!!!

I was also not happy about having done the surgery for the first year at all.

I am now about 18 months out and still a little on the fence about it but not regretting it like I did the first year.

And be happy you had a big weight loss cause that part of this is usually fleeting! I stopped losing at 13 months out-have not lost a pound since and I really work at it, daily!!!

So enjoy everything that falls off of you now even if you are throwing it up! Seriously!

And just FYI, I am sure your Dr. told you this but you may need to have more dilations in the future so if you have additional similar problems, go straight to your gastroenterologist and get another dilation. The body can sometimes heal and close you up again.

As far as complications go, this is one of the better ones to have-seriously!

Glad you are feeling better!!

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Deleted when I realized how old the post was.

Edited by gnaed

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I am going into hospital on Monday 12 Sept 2011 for a RNY Gastric Bypass REVERSAL. I've been so sick with non-stop diarrhea since my gastric bypass on 27 June 2011. I welcome anybody to contact me. Simone email [email protected]

Edited by GastricBypassGirl

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I am going into hospital on Monday 12 Sept 2011 for a RNY Gastric Bypass REVERSAL. I've been so sick with non-stop diarrhea since my gastric bypass on 27 June 2011. I welcome anybody to contact me. Simone email [email protected]

I wish you all the luck with your reversal.... mine was the best decision I ever made. I have been able to maintain my weight (and even shed 1-2 lbs, if needed) since my reversal in January. I have never felt healthier or stronger. There is hope after the reversal.... Stay strong!

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Hi Moonshadow! I read your story last night- how awful for you- I am a nurse- not a Dr so can't diagnose- with that in mind I wonder if during your original surgery your Vagus nerve was irritated or damaged- now causing the nausea- The Vagus is the cranial nerve that goes to your stomach for acid production etc- In years gone by when treatments for Stomach ulcers weren't as advanced as now some sufferers underwent a "Vagotomy" where the vagus nerve was cut higher up- just a thought as to causation- or could be completely rubbish!! I hope you find relief soon.. I can't imagine how awful you feel- sending my thoughts and prayers your way- please keep us posted!!

2bskinny43 and Mizmarycate like this

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Hi, I had my stomach removed in June and am very happy!! The only thing is that I am gaining weight! I have no nausea, throwing up and NO PAIN!! Please talk to another bypass surgeon! Dr. Zoron at Scripps Mercy Hospital is the best!!

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I joined this site for my husband who is in the hospital at this time with unknown diagnosis due to the after effects of gastric bypass. I am searching for answers since what he is going through is so rare. He had surgery in Sept 2011 he weighed 313 morning of surgery his high weight was 338 in Aug. He weighed 180 April 04, 2012 and after a 15 day stay in the hospital and being on fluids and nutrition through a PICC line they say he has gained 17 pounds back. They also said some of those 17lbs could be difference in scale from Dr. Office to hospital and rehydration. He has been hospitalized 2x first one in Dec 2011 for 10 days and was sent home with a “J” feeding tube. It was removed 1 month later. Another inserted in Feb and he currently receives nutritional feedings through the tube. There is such a long story to all of this and will answer any questions as I have a tone of questions as I am looking for someone who has experienced the same symptoms and what their outcome was. Long story short, he went into the hospital after 3 bariatric surgeons and 1 gastroenterologist agreed that a Roux EnY reversal needed to be done and that his body was rejecting the surgery. They now have changed their mind in doing the reversal, symptoms are still very much there and other tests have been issued and come back normal which ruled out SMA and MALS and now they are talking about sending him home. He has been out of work since Nov 28 and we are looking at his work having to replace his position if not able to return back in 2 months. That also cancels out his insurance. I need help! He is currently at UCSF in San Francisco which is a teaching hospital and he feels like they are giving up on him and he is being sent home to die… HELP ME HELP HIM!

SYMPTOMS-

-constant abdominal pain since surgery which has gotten worse through time ranging from a 5-10 never going pain free(September – November pain was present but ranged from 2-4 on pain scale) now is more from 8-10 on pain scale never getting full relief, RAPID WEIGHT LOSS (158lb weight loss in 8months which most occurred from Nov-Feb), nausea, vomiting, wrenching, dehydration, less frequent BMs, gas buildup, gastro intestinal noises compared to “thunder storms” (started after tube feeds)which tube feeds were done through a long 12hr period of time then tried doing bolus feeds, DEPRESSION, never graduated from soft “creamy” foods, weakness, muscle loss, dizziness, falling due to balance, slow healing, hair thinning, slow facial and hair growth, MOOD SWINGS, short tempered…

TESTS THAT HAVE BEEN DONE-

3 BARIUM X-RAYS, 5 CT SCANS, 1 SONOGRAM, 2 ENDOSCOPIES, 2 EGD’s , 1 LAP ABDOMINAL SCOPE, ADHESION CLEAN UP, 2 “J” TUBE FEEDS, PICC LINE, BLOOD TESTS.

DOCTORS INVOLVED-

3 BARIATRIC DOCTORS, team of 7 student doctors, GASTROENTEROLOGIST, VASCULAR SURGEON.

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Hi Fire Wife, just wondering how your husband has been doing??? My sister's story sounds a lot like your husbands.She had a RNY bypass in december 2011 and since then has been struggling with severe chronic diarrhea and abdominal pain. She has had multiple hospital stays, tons of tests, a PICC line for nutrients and nothing has helped. She is not able to absorbed any nutrients and is in extreme pain when she eats.... After seeing multiple doctors she was referred to the Mayo. Mayo suggested three things at this time .... One: they discussed a possible problem with her pancreas. Two: bacteria getting trapped in her intestines due to her small bowel being shorter from her original surgery. Three: Reversing the original surgery… In order for her to further test her pancreas she would be required to eat a lot of fat so they can measure the fat coming out of her body, she doesn’t think that is an option due to pain. So right now she is trying an antibiotic to see if that gives her any relief… The good thing with the antibiotic route is she should know within a few days if it is the bacteria causing some of this…. She wants to get the original surgery reversed, but needs to complete these steps before the doctors will reverse it….She is in extreeme pain and is ready to give up!... Does anyone have any advise??

Edited by amy2822

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Amy2822 My husband was able to come home May 1st without the feeding tube. He had his 2 week check up at hasnt gained any weight but didnt lose any either. They were able to get some pain control by using 50mcg fentanyl patches 1 every 3 days along with percocets 10/650, Merinol for nausea. He also takes Lexapro for depression and all of his vitamins. His GI doctor suggested he go to www.canadadrugsonline.com

Domperidone (Motilium) 10mg every 6hrs

we are willing to try anything. Our Doctor did have to fax over a prescription even though the medication is not approved for sale in the USA he was able to write the script and we were able to get it. It will be here in 2 weeks. Some other alternative options. My husband is against taking drugs and is really upset that he is on so many pain meds. He had a family member turn him onto obtaining a 215 card here in California and since he has a hard time smoking he is able to use the nebulizer. He now has more control of his pain and can sleep through the night without having to take any pain meds. Like I said we are desperate! We still have no answer to what happened. I have sought out an opinion from a surgeon who does reversals and he seems to think that my husband is not a good candidate for a reversal. He actually said he wouldnt do a reversal on anyone unless they were a year past the surgery date. Now I will tell you he does suffer from full body twitching. Almost like when you fall asleep and you wake up because you were dreaming you were falling... that is what he looks like. We are told that is due to the lack of exercise and fluid intake. Its easy for me to say eat more, drink more and exercise. BUT VERY HARD FOR HIM TO ACTUALLY DO. I do have him on a high protein/calorie diet making him smoothies with greek yogurt, mixed berries, V8splash(berry fusion) and a scoop of whey protein,. Now he can usually drink 2-3 smoothies a day and get in 2 glasses of apple juice along with eating a yogurt or 1c of cottage cheese. We are averaging about 700-1200 calories per day. The doctor just said that he thinks we are on the corner of this but not on the other side, My worry is the pain is all controlled by medicine so to me its all a cover up. I guess in theory is he will gain weight and symptoms will go away, He has to push himself everyday! I have not given up on him and I always journal his food and fluid intake to show the doctors. His sister works for a GI doctor who is doing her own research and that doctor actually wants to see my husband and wants us to release all medical records to him. AGAIN if your looking for answers you will do anything and if your looking for the pain to stop or be within a managible range then you will do or try anything.

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Thank you for your quick reply! I am at a loss with my sister... She has now decided to stop eating and taking her anti -biotic because she is in so much pain!!! And like you said, we can encourage her the most we can, but it's up to her to actually eat....We have been talking to a few of her doctors, but as of right now have been given the run around... She just can't surive much longer like this and doesn't have the fight in her anymore! Also, the doctor's refuse to give her any pain meds that help her!!! I just don't know where to go from here!???!! Thank you for the skake idea, I'll try that! And will look into the medication.... I will be thinking of you and your husband, and wish good health for your husand!

Please if anyone has any ideas on what we should do, or how to encourage my sister to conitue fighting, I would greatly apprectiate it!

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Has she gone for a second or third opinion? I'm not sure where she lives but honestly teaching or university hospitals seems like they are the place to be. If you ever need to chat email me and I would be more than happy to talk on the phone about this or instant message. Is your sister going to any support classes? If not she should! Email is [email protected]

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Thanks Fire Wife. I did e-mail you a couple days ago.

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