Patient needing answers.

anyone having dumping syndrome after 17 yrs ?

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Hello, i had my surgery 12-17-2000, and here it is 16 yrs later and im still sick as a dog from the dumping syndrome, to the point where i have had to avoid eating during the day if i have any activity outside my home, because it is so severe that my heart feels like its coming out of my chest, and i start to sweat and get hot flashs, and feel tired, and headache, and like if im going to pass out, does anyone else feel the same ? 

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I am very sorry for your problems. You may want to consult with a surgeon to make sure that everything is OK in your body. I have dumping syndrome only once every four months or so and only after I eat something very high in sugar and fat, like a bowl of ice cream. 

By the way, you look great. 

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I only get dumping if I eat fried foods (which I don't eat)  or alcohol (I don't do that in public as I don't know how I'll react). 

I agree, you look fantastic! 

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I'm just over 9 years post-RNY and the only thing I have to avoid are starchy carbs because they will send bring on a low blood sugar very quickly.

Have you seen a bariatric surgeon about this?

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so sorry about your dumping. do you dump on everything? there's a few things that may be going on here, and really, the best thing is to follow up with your surgeon. If you can't follow up with them, then your primary doctor or a GI specialist would be your next options.  It doesn't seem ok that you're having this every day. 

Beautiful pic, congrats on your long term success! I love to see stories from people who are further out. Where was this pic taken? It's beautiful, and so are you!

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hello, thank you soo much, it was taken in Rosarito, B.C,   I have been seen by countless G.I  specialist, cardiologist, and internist, cardiologist, and endocrinologist, some suggest possible reversal, but i dont see that as an option,  thants why im reaching out to see if there,s others out there that far out with the same problem, and see what works for them, the only thing that seems to work for me is not to eat if im going to do anything, then i make sure i can sit and rest at least an hour after i eat, wich is not always possible, you would think i would be thinner from this, but i think eating at night is the culprit, since thats my only time i can remain inactive longer. Thanks for your kind words, May God Bless you and your Loved ones, today, tommarow, and always.

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All I can think of is that there must be something that triggers it. That said, I know I can't eat a cop of sherbet, my only dumping experience in almost 4 years. Best wishes for you to find a solution!

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Check into reactive hypogylcemia....have you done a 4 hour glucose tolerance test? 

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yes i have had a 1 hr, and a 3 hr glucose tolerance test, plus my glycohemoglobin is normal, the endocrinologist has done countless test,  ive tried eating no carbs, andjust protein, or mix of a little of everything, and not drinking any liquid 1 hour before or after, and i,ve never had seconds since i had my surgery, i use a childs plate and cup when home, and they evn put me on glucophage and byetta inj.  Some doctors thought it was just in my head, so they put on an event monitor wich monitors your heart 24/7 for 2 weeks, and i had to log when i felt sick, and my events for the day at all times, and they soon realized it was true that it was severe, since my heart goes from normal 80, to 140 up to 166 the highest marked, thats why im asking if anyone else has something similar, and if anyone has found anything that works, i just want to be able to live my life normal,  like everyone else.

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How are you with fats? When I found out  I had reactive hypoglycemia, I started on a ketogenic diet and it stopped 99% of the episodes. 

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Wow, you've really been through it! I'm so sorry to hear this. I wish I had answers for you. I'm stumped :( 

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thanks, your so nice, its been so hard, but im not giving up, im just worried abaut what its doing to my heart, because i was normal before, and now the cardiologist did a stress test and they called me within 30 min of leaving the office that i had to come in urgently to see the cardiologist, and had  to have an angiogram, it came out fine, but she says all this up and down with the heart rate is eventually going to take its toll on my heart, and im afraid of getting older and having a heart attack during one of these episodes, thats why im trying so hard to do something now, before it does more damage to my body. Honestly if it wasnt so bad, i would never think of posting on here, but i feel like no one understands what im going thru except another person dealing with the same thing or knows what the dumping syndrome fells like. Have a Blessed week, and thanks for being so supportive. 

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On Tuesday, January 03, 2017 at 5:49 PM, lealphachienne said:

How are you with fats? When I found out  I had reactive hypoglycemia, I started on a ketogenic diet and it stopped 99% of the episodes. 

I cant have any meats, and really dont crave them, i will eat a little chicken, or eggs, but its hard to get the meat down, i end up having hick ups for a long time because of the meat being unable to go down, until it finally goes down, and fryed foods get me nauseas, so i avoid that, but i like salads, and soups, and if i need to i can eat ground beef, but i know im just one of those weird cases, that is the exception and not the rule of what happens when you have gastric bypass, im happy i lost weight, and thankful, but i did it to save my health, and now i kind of wonder if the cure was worse than the illness like they say.

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I didn't have dumping syndrome for the first year or so.. but now (almost 2 years post op) I get it ALL the time.  Have you tried a food log?  I'm just wondering if you can isolate exactly what ingredients are causing you to dump. I still don't know. I can have sugar and have no problems sometimes, then other times I get really sick. Sometimes I get dumping after eggs... some veggies. no rhyme or reason to it. 

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hello Scarlett, sad to see you,re also feeling this horrible dumping syndrome, it,s the worst feeling ever, the first, second, third, and even up to the fifth yr i was told hold on, it,ll go away, but so many yeats out, and still feeling as bad as the beggining is horrible, im not saying it wasnt worth it, but if i had this surgery it was to live a better quality of life, and to live longer, but at this rate i dont think my heart will last long with all this racing and its so bad sometimes i get chest pains, ive been admitted over 5 times for possible heart attack, or just for observation, to see why im having thise episodes, i have logged, and used all proteins, and veggies no carbs, and no meats other times, others no sugar, grains, only to have stumpped my endocrinologist, and have him send me to another doctor, and gastro, i feel like a guinea pig, under a microscope, and the doctors looking at me like a rare medical mystery, but i have faith i will find something to make my life better soon. I cant see a future as an elderly woman with this feeling, if i feel weak now, imagine at 60,

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I am so terribly sorry you have been suffering for so long. 

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Thank you so much,  that means alot, i hope i can find someone who has had somewhat the same expirience or someone who know what else might help, so far i have given up searching with Dr,s for now, so now im searching amongst people who have had the surgery and know what it feels like to have the dumping syndrome effect. Thanks for your post.

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On 1/10/2017 at 8:56 PM, Patient needing answers. said:

hello Scarlett, sad to see you,re also feeling this horrible dumping syndrome, it,s the worst feeling ever, the first, second, third, and even up to the fifth yr i was told hold on, it,ll go away, but so many yeats out, and still feeling as bad as the beggining is horrible, im not saying it wasnt worth it, but if i had this surgery it was to live a better quality of life, and to live longer, but at this rate i dont think my heart will last long with all this racing and its so bad sometimes i get chest pains, ive been admitted over 5 times for possible heart attack, or just for observation, to see why im having thise episodes, i have logged, and used all proteins, and veggies no carbs, and no meats other times, others no sugar, grains, only to have stumpped my endocrinologist, and have him send me to another doctor, and gastro, i feel like a guinea pig, under a microscope, and the doctors looking at me like a rare medical mystery, but i have faith i will find something to make my life better soon. I cant see a future as an elderly woman with this feeling, if i feel weak now, imagine at 60,

Hopefully the heart racing will not affect your heart people with anxiety having their heart racing all the time and it does not shorten their life span. Just a thought I really hate you have been dealing with this for so long. 

 

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