Stricture again! UGH - Page 2 - ThinnerTimes

AlabamaChick · 08-18-2006, 11:54 PM

WOW Diva, you have been through alot too! It's nice to know I have two buddies that know what I'm going through. The one thing I worry about sometimes is that I will NEVER want to eat again or my pouch will become so accustomed to not ever having food in it or throwing up on a daily basis, that it will reject it and I will throw up the rest of my life even when I get the okay to start eating. I almost feel bulimic, except I'm doing it with liquids and pureed foods. I get excited when I figure out something that will be good pureed and then when I take a bite or two, I get nauseated and then I am done. I don't even want anything even although I am having hunger pains. Like tonight for instance, I was so hungry I felt totally sick all over, but I would not even try to put any type of cream soup or something that might go down in my mouth because I just hate eating now. Hunger stresses me out to the max now. I can almost feel my blood pressure and stress level rise when I realize I need something to eat because it hurts so bad to try. So, I went to bed and slept for about an hour and then got up and the hunger pain was gone, but I was really sick for a bit before I went to sleep from being so hungry. I don't think this is good for me psychologically, as well as physically. I don't want to end up being anorexic after I reach goal and then keep going to lose down to nothing or become bulimic, but the way my mind set is about food, it seems it could be possible. Maybe I will change my feelings after I get to where I can eat "real" food. I don't know...... Do the both of you have these problems? Today, I have had 2 cups of milk with protein mix and about 10 ounces of water again and about a cup of ice chips. And I was nauseated even drinking the protein drinks. It scares me because this is NOT enough to live on and be healthy.

Blueyz · 08-19-2006, 12:33 AM

Quote:

Originally Posted by AlabamaChick

Well, I went to see my surgeon again today because I could not wait until my appt. at the end of the month for follow-up of my ulcer and stricture (which I had dilated 4 wks ago) because of throwing up every day and not getting but about 10 ozs of water in a day, two cups of milk with protein mix, and NO food whatsoever every day. I can't live this way much longer. I have been eating absolutely nothing. It's not even worth trying just to hurt like my chest is going to explode and then end up coughing and choking to death until I throw up because it's hung. (and I am talking just pureed food or even liquids) He sent me to have a barium swallow today (costs over $700 total paid up front), which came back as I expected, and was normal. So, I have another stricture.

My surgeon had scheduled a return appt. for Tuesday next week and then would set up the EGD after that, but after I had my test completed today and found out that everything was normal by the radiologist that performed my test, I went back to my surgeon's office and talked with the receptionist and told her I was not paying ANOTHER $75 to come back to the office on Tuesday just for him to tell me it was normal and then I have to spend another $3500 to have an EGD done next week, not to mention every day I have to wait for it to be done is just a little more torture on top of it all considering I have not had solid food since my surgery 10 wks ago. So, I finally got the call after I got home that I will be going for my EGD on Monday at 11:30 a.m. THANK GOD! I can't wait to be able to swallow and not hurt, even if it only lasts a couple of weeks again.

The up side to this all is I had lost 3.5 pounds this past week!

Oh Trina, I feel you on the money thing(copays). I am so sorry about all of this stricture nonsense. I am sending you prayers and hopefully you will get well soon. I can relate..ya know.

Take care of you and keep your spirits high...you are always such great support and deserve some great smiles back.

Hunnyblonde · 08-19-2006, 12:43 AM

Trina, hon, I can't commiserate with you over strictures, but I am sending you prayers and hugs!

Feel better soon and keep up your strength and spirits!

LisaBoston · 08-19-2006, 09:20 AM

I too had a stricture - only 1 - Hang in there sweetie....glad you took steps to get in sooner. It does get better.

goblin · 08-19-2006, 09:29 AM

I only had wo strictures, but they made my life pretty unpleasant. I ate *nothing* for weeks. You're going to come through this and there will be a time when this is all a distant memory and you will be happy you had the surgery. Trust me on this.

As for the cost of everything, I'm so glad I live in Canada!

Lisa A.

Disappearing Diva · 08-19-2006, 09:32 AM

OH my!! Ican SOO totally relate with feeling belimic!! My hubby woudl just look at something I had in front of me and just say,.."Umm,..Erin? Maybe jsut to save us all the time and energy,...you want me to just throw that in the toilet?" even our friends became so accustumed to me running from the room adn nto returning untill I was all sweaty, red faced, with boken blood vessels all over the face. It was so horrible. What was worse though,..was I thought that this was all soemthign I was doing to myself. I woudl get so frustrated, as I coudln't eat ANYTHING,..then I woudl go on-line or talk to people,..and they woudl almost scold me for "tryign things my tummy wasn't ready to handle"!! UGH!! Since when is protein shakes soemthign yoru tummy can't handle??!! Oh,..but they figured I was doing the wrong kind or something,..it was SO frustrating,..I woudl just sit there and cry. Then I thought maybe it was that I was just too stressed out while eating. Especially if the kids were around and fighting whiel I was tryign to eat,..it felt that that made it worse. Looking back on it,..it was nothing I coudl help. You can't controll how quickly you close up. I was usually good for a day or two at most. It was a terrible time,..but looking back,..I was really forced to learn how to eat slowly, adn really healthy. I know it seems liek this will never end,..but it does. And sooner then you relieze, you will be able to eat things you never dreamed possible again,..then you will be liek everyone else in the world,...having to be really careful not to indulge in the thigns that are "forbidden". Its been 10 motnhs for me,..and I can honeslty eat ANYTHING I want again. I have to be so careful,...and remember the basics I was forced to live by for so many months. thats the only thing keepign the weight off at this piont for me. For me,..it seems liek such a bad dream,..but somethign that happened light years ago. Crazy I know,..but things will get better. You'll see. Keep your chin up,...adn honestly,..the hunger you feel is mostly head hunger. So eat whatever your family is eating,..but spit it out!! It least it'll calm that head hunger down,..adn you'll feel "normal" for a little while!!

MiladyB · 08-19-2006, 09:48 AM

Oh Trina, sweetie! Here you have been so supportive if me and look what you've been going through! Dyann, is right, you shouldn't have to wait especially since you are paying out of pocket! I can't believe your surgeon suggesting you go to the ER for hydration so you could wait until Tuesday for the EGD??? It makes NO sense at all. I haven't had any strictures but I know the surgeons from my doctor's office want them treated asap! My thoughts and prayers are with you, Trina. Just keep pushing that doctor of yours.