Good morning!
There is another gal here that I believe is having the same sort of problems. You could try to PM her. Her name is Page52. She is really sweet, and I'm sure she would be more than willing to share her story with you.
Have you had an endoscopy or an upper GI to see what's going on yet? Some times they can provide answers too.
Wish I had some advice for you, but at the moment all I can think of is to contact a digestive specialist in co-ordination with your surgeon and see what's going on in there.
Sorry this is so rough for you, but hang in there. You've come to the right place for support and understanding. There are a lot of great folks out here and lots of different experiences and outcomes. Keep your chin up and keep searching, there's got to be something that can be done.
Sharon