Wow,,,I am surprised to hear that this is happening in our hospitals in this day and age,,,what is going on? GBS is so common now that you'd think these people would get it right and know how to treat our needs....There has to be something that can be done to get our medical world up to date on what our needs are...I am going to start making some phone calls Monday morning and if any of you have more suggestions or ideas on what I can do,,please post them...One voice isn't enough,,,there needs to be more of us doing something so that when accidents do happen to us and we are taken to a hospital not familiar with us we can be worry free and know that our medical needs will be met just as if we were diabetic or had other ailments...
Thanks for listening you guys,,,,and to answer on of the posts,,,yes, I am walking

My head is still pounding from the concussion

and I am really weak and tired,,but I am doing ok...My husband took me out of the house today so that was a nice change...Monday is going to be so hard to return back to work,,,I feel like I haven't had time to recoop yet, but I will manage...Prayers people,,,lots of prayers please :-)