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4 Years Post-Op (GB) Forum for gastric bypass patients that are four years post-op.

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Old 06-15-2008, 06:28 PM   #1 (permalink)
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Default Long term WLS roll call!

My fellow old-timers, I've seen that when a new forum section is created that there is always a "roll call" for all the people to say "I'm here! Here's my story!" But I don't see one here in our forum yet! (Pause to thank John very very much for creating this subforum for us!)

So, if I may be so bold, I'd like to invite those of you who are long term post-WLS to say hi and share the bullet of your WLS journey here. Mostly so that current members, like me, and others who will come across TT at some point in the future will know who the forum participants that are further down the road after WLS because we are familiar with the different phases, stages, experiences and issues as the years go by. And I remember what drew me here when I first came to TT was that were long-termers. I always tried to hunt for the posts from people who were far out like me. Lisa was one of the first I got to know (hey woman!) and I believe that other people who find TT will do the same thing I did and look for the long-termers. For A LOT of reasons...

So can we have a roll call for those of us around or over four years post-op and see who's part of this new long term post-op subforum? I think our numbers are small, but maybe I just haven't yet met all of us long-termers yet, and there are more here than I realize. I sure hope so...

I'll start! I'm in the Phoenix, Arizona area and my surgeon is Dr. Allan Newhoff. According to Tricare, my insurance company at the time, who picked him over another surgeon I saw, he is the best in the west (back in 2002). I would have to agree He had a lot of experience before he did me, and this was kind of at the beginning of the huge upswing of the WLS boom that has since occurred.

I didn't have the option of laparoscopic surgery, as he believed that OPEN RNY was the best option to, in his words, "get in there to see and get my hands on everything and make sure it's all wired properly for no complications post-op or EVER." He was right on the money, as I've had no complications like strictures, obstructions, twists, blockages, low levels of critical stuff in my body, or any other issues related to the surgery. I am fortunate, and I give a lot of the credit for my success to Dr. Newhoff.

He paid me the highest compliment a couple of years ago when he said that I was one of his biggest success stories. I was surprised, because I assumed back then that it worked for everyone. Hearing him say that led me to start researching the current trends in WLS, and ultimately led me to reading Thinner Times. That's when I first realized the variances in success and the percentages of amount lost, etc. I hadn't been in any groups and didn't then know anyone else who had WLS.

A funny side-story about his skill: I went to see him after about 9 months I think, maybe a year, and complained that I saw Al Roker eating a hamburger and fries and I couldn't even eat a whole chicken thigh! Wah! I felt deprived and whiny then...was still in that stage. Ugh. Remember those good ol' days?

His reply was "So what? You'll never be fat again. So be happy with YOUR pouch size, it will serve you well, and ignore what Al Roker and Carnie Wilson can eat. Your body will not be obese again." I sighed and left, dejected, but to this day I chuckle at his words. He was right, of course, and today I CAN eat a whole thigh. I'll admit that during that visit I didn't confess I had started drinking coke pretty early after surgery (I was a coke junkie!) I told him later and he smiled and said I was fortunate that I could drink it but that I should stop. I did for awhile....

Before you gasp and cluck-cluck about drinking coke, remember that some of the things that are "the gospel" about WLS now were not as well known back then. But I also have to admit that I wasn't as educated back then as others are now, because I never went to support groups and there weren't any forums out there for self-education. I did all my research online and in the library by studying the procedures through the years and reading anything I could get my hands on. Kind of a self-study program. He had support groups I think, but I had my own way of doing things and was dealing with disabling pain that prevented me from getting out somewhat, and I was never really a "group" person. I've always done things on my own. (Yeah, that's an issue that's come up after shedding the weight.)

I tell the chicken thigh story because I think Dr. Newhoff must have done a spectacularly exceptional job in the pouch size and rewiring of my plumbing. And he's someone I will forever be grateful for. I'm glad my insurance company sent me to him instead of the guy I went to see for my consult after my referral from my pain doctor.

Ah...the pain doctor...that leads me to my reasons for WLS. I had a long list of them, which helped me get approved. My approval process wasn't quick, I didn't have a pre-op liquid diet (they didn't do those back then), and I had to wait a few months for the doc's schedule to get me in for surgery. During that wait time I did what the doc said: I quit eating when I was full AND I chewed all my food 12 times.

He said it was training for post-op and boy was he right. I dropped about 40 lbs. during the months I waited for surgery, and was at 245 when I had surgery. I was actually worried he'd refuse to operate, but it didn't matter. My co-morbids were more than enough to qualify me for surgery and he told me it was the only option I had unless I wanted to be in a wheelchair by the time I was forty.

The co-morbids were coupled with hitting an all-time high weight of 301 lbs. I'm 5'8" and one of those people that nobody could believe how much I weighed. My usual weight was around 225, then it became around 245. I maxed out at 300 because I'd taken different medications for my health issues. One of them packed on about 50 lbs. in just a few months.

Of course my eating a lot was the main reason, duh!, but coupled with medication that caused weight gain, I was basically screwed. Being in chronic pain and sedentary due to pain just packed on more pounds. Of course so did eating stuff like tons of Red Vines, boxes and boxes of fruit popsicles, bags of peaches, bags of popcorn, bags of chips, 2.5 portions of dinner, a rack of ribs at a sitting, big bowls of ice cream, and whatever other food of the week I shoved in my mouth as much as I possibly could for comfort and filling the void inside me and for many other reasons that have been things I've had to work through post-op. That'd be the psychological reasons for obesity...

A few of my conditions that made me choose WLS were:
I had bad knees and was told knee replacement was in my future if I stayed obese;
I had disabiling pain, was on disability, due to rotatory scoliosis (a moderate to severe curvature that rotates and cavitates the spine in toward the upper pelvic crest) and was told at age 32 that a wheelchair would be my future if I stayed obese;
I had a then 2 year-old hip replacement that would only have a half-life of effectiveness if I stayed obese;
I had developed Barrett's Esophagus with severe acid reflux. Barrett's is that condition that exists for awhile and studies have shown leads to cancer of the esophagus down the road;
My blood pressure kept creeping up, but wasn't on drugs for it (yet);
My left leg was swelling (the side of my implant) due to vein compression;

I had other things on my list...but don't remember them all now and this has gotten very long!

I'd say the biggest personal reason I had surgery was my then 11-year-old daughter that's a member of a family where every female is obese, on both sides of her family, and I was a role-model mother that had been obese ever since I gave birth (with one exception of the phen-fen diet). Boy did my surgery have an impact on her body image, diet and self-esteem!

I lost all my weight in under a year, hitting the doctor's goal of 145 quickly. I thought he was high when he said 135 was my optimal weight but that he figured the best I'd do was 145. I sat there at 300 lbs. and thought he was off his rocker saying that I should weigh 135. Seriously. I mean come on, I had a big bone structure! (I don't...I have a small frame actually but who would have known it under all that weight!)

I've fluctuated some over the years, with a low of 114 (skeletal and very bad-I went through a huge loss of my child) to a high of 165 (chubby with fat rolls, just like the boyfriend I had who I drank beers and ate big with). I'm around 132 now and would like to get to 140. I like that weight better-less saggy skin I haven't had plastics but would really like to. Can't afford it. Some day I will though. I will I will I will! Bridget just told me about an LA plastic surgeon that gets insurance to pay, but I only have Medicare right now. May add employer's insurance if plastics is possible with BC/BS plan. If anyone knows, give me a head's up. I'd love ya forever!

I found TT about a year ago, and am glad to have found a few that are long-term post op. I came here because some of the brain surgery was in the works, the stuff that goes on after the body surgery. I liken it to one day I woke up thin. I realized "This is me." And it was somewhat strange. I became comfortable in my skin, saggy tits, thighs, tummy and all, but I'm not enamored with them obviously. Who would be? I love to see those of you who have had plastics, and will some day be able to post here my body shots of pre-op and post-op from a booby job, tummy job or lift. Don't know what it will be but I'm hoping I can avoid being cut open where my low back tattoo is. I got it right after that "day I woke up thin" and it's a beautiful fiery Phoenix. Tramp stamp with artistic class and passionate colors

I'll stop there...and I wrote so much of my story for the primary reason that there are going to be others who want to know about long-term people, and I'm here to share some of my experience gained by being years out from surgery. AND I'm here to find the other long-termers that are dealing with or have dealt with some of the same issues I have and still face, now that I'm reaching my six year anniversary.

Look forward to seeing who else raises their hand for roll call!

Phoenix
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October, 2002 - Dr. Alan Newhoff, Arizona - My Hero!
5'8" - 300/129.5/140/145 - Working to regain to my FEEL GOOD weight!
(Highest/Current/My Goal/Dr. Goal)
Highest Size: 26/28
Current Size: 6/8
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Old 06-16-2008, 03:50 AM   #2 (permalink)
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thank you for posting this... and the details... Someday I hope to be an old timer here too!

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Old 06-16-2008, 10:37 PM   #3 (permalink)
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You're welcome blisandt.

:::::tapping foot patiently to see the roll call of the old-timers:::::::::
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October, 2002 - Dr. Alan Newhoff, Arizona - My Hero!
5'8" - 300/129.5/140/145 - Working to regain to my FEEL GOOD weight!
(Highest/Current/My Goal/Dr. Goal)
Highest Size: 26/28
Current Size: 6/8
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Old 06-17-2008, 04:23 AM   #4 (permalink)
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I enjoyed reading this Phoenix Hope others post their stories too
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Lap Band 09/13/2004. Did not receive any proper aftercare.
Current status: Losing weight on my own, without restriction.
On surgeon's GBS waiting list - approximate wait 10 months - April or May 2009.

Start June 6, 2008: 334
Current: 320
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Old 06-17-2008, 11:56 AM   #5 (permalink)
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Hello - my name is Pam and I had LAP RNY on 7/13/04 (almost 4 years ago) and I found this forum a short time ago. I had been looking for some place that I could go / read that I would be able to learn from and stumbled onto this wonderful place that has been such a tremendous help to me.

I weighed in at 342 at Surgery and lost down to 223 which I held steady at for about 3 years ago. My body just wanted to stay there. I am 5'9" and I do believe a large from, but seemed I couldn't lose another pound no matter what I did. I was pretty happy at 223 as I lost weight to get my health back not to be skinney. I was on 9 med's a day for blood pressure, cholesterol, diabetis, thyroid and depression. At 223 I was healthy and felt pretty good. I didn't realize how much I would begin to hate my legs and arms with all of the hanging skin, but I cannot see myself ever being able to afford plastic surgery, so I have learned to live with it. I always wear 3/4 length sleeves and I almost never wear a dress............so that's how I deal with it.

Last year I became depressed again after loosing a dear nephew to Lymphoma and began to comfort eat again. Little by little I gained back up to 241 and was scared to death!!! I called up my surgeons office (he is in CA and I live in ID) and said, HELP! I began to have weekly phone appointments with them to get me back on track. I am now weighing in at 234 and plan to get to 215 and then decide if I feel I want/need to lose anymore. As my doctor said "you lost to gain health....you have already succeeded".

My doctor is Alan Wittgrove and I have fallen in love with him and his entire office staff. They have always been there when I need support and I have never meet a more caring group of people. He has an annual Fitness Retreat and Reunion over 3 days that all are invited to that has breakout sessions and times to meet others who have had the surgery and are going through the same things you are. I have attended every year and feel good "checking in" with everyone. It is an inspirational weekend.

I have found this site to be so helpful as far as support goes and have learned a lot from others experiences. I am very happy to have an outlet that I can use to help keep me on track.

Well........that's about it for me. I thank God every day for this surgery and would do it again if I had to. I had an uneventful surgery and recovery. I had surgery on a Tuesday and was visiting Sea World on Saturday! I didn't lose any hair and LOVED the first 6-8 months when I couldn't eat very much and food was not an obsession with me. The further out I am, the more I have the old feelings about food and can eat so much more (at least I can when I eat the wrong foods...) If I eat as instructed, I really cannot eat all that much. Protein really does fill you up so much faster than a bag of potato chips!
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Old 06-17-2008, 06:07 PM   #6 (permalink)
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Hey! My name is Sharon. I've started to respond to this roll call a couple of times now, so I'll just keep it short.

I had open RNY July 23, 2002, so next month will be 6 years. Last year I had revision surgery where the doctor reworked the arms and removed about a foot of intestine.

Now it's a little over a year since revision, and some of my symptoms are resurfacing. The bigest problem I'm having is maintaining. I was 124-129 for the last two years, and now am between 131-133. I can't seem to get back into the 124-129 range. Part of the problem is I'm hungry all the time. I was told last year that my pouch was large and the opening out (stoma?) was at 3cm. My surgeon said he could fix the other things but couldn't touch my pouch. So here I am. I have an appointment next friday to see a baratric doctor about sclerotherapy. Hopefully if he agrees to do it, it will sucessfully reduce the opening and I will be able to hold food in my pouch longer and not be hungry all the time. So for now I'm just crossing my fingers that he will be willing to do this and that it will help me to lose to goal and not feel like I'm starving all the time. Time will tell. I really feel I need the ROSE or the stomafix, but alas, insurance doesn't cover either of those procedures.

So I'm waiting not so patiently, but trying to not get my hopes up to high as I really don't know what this doctor will say. 10 days till my appointment. Wish me luck.


Sharon
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WLS 7/23/2002
Revision 4/25/2007
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268/125.0/105-110
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Old 06-17-2008, 08:41 PM   #7 (permalink)
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Quote:
Originally Posted by SDeRossett View Post
I had open RNY July 23, 2002, so next month will be 6 years. Last year I had revision surgery where the doctor reworked the arms and removed about a foot of intestine.

Now it's a little over a year since revision, and some of my symptoms are resurfacing. The bigest problem I'm having is maintaining. Sharon
Sharon, Can I ask why you had to have revision surgery? Were there problems with your "original equipment" that required revision? It's always good to know other people's situations when being a long time out from surgery, so thank you in advance if you would share that part of your process.

And after revision, were the problems fixed? The problems/reasons that made the revision necessary? I'm unfamiliar with revisions, and have only read about reversals on TT.

Thanks Sharon, my fellow 2002 WLS TT member
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October, 2002 - Dr. Alan Newhoff, Arizona - My Hero!
5'8" - 300/129.5/140/145 - Working to regain to my FEEL GOOD weight!
(Highest/Current/My Goal/Dr. Goal)
Highest Size: 26/28
Current Size: 6/8
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Old 06-18-2008, 02:59 PM   #8 (permalink)
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Quote:
Originally Posted by Phoenixfire View Post
Sharon, Can I ask why you had to have revision surgery? Were there problems with your "original equipment" that required revision? It's always good to know other people's situations when being a long time out from surgery, so thank you in advance if you would share that part of your process.

And after revision, were the problems fixed? The problems/reasons that made the revision necessary? I'm unfamiliar with revisions, and have only read about reversals on TT.

Thanks Sharon, my fellow 2002 WLS TT member
Yes, you can ask. Over the course of about a year and a half I started noticing that I was having severe diarrhea (like water about 4 times in the morning) TMI, sorry, but you asked, I was having terrible stabbing pains in my pouch (gas), the only thing that would relieve it was to come home and lay on my belly for about an hour and a half and to try to pass it, as time went on, it didn't matter what I ate, everything made me dump, a small handful of dry cheerios, meat, oatmeal, salad, lean cuisine everything. So after suffering for so long I decided I'd better go see a digestive specialist and see what was going on. He told me that the opening out of my pouch was too large and undigested food was passing directly into my intestines where all the bacteria were acting on it causing the diarehea and bad gas. So I took this info and the results of my endoscopy to a surgeon as mine had retired, he read it and ordered an upper GI. What he found additionally was the the arms were too long and holding food and refluxing back into my pouch. He also found that my intestine had dialated and was acting like a second stomach. So they scheduled me for surgery, shortened the arms and removed about a foot of intestine. I was told due to scar tissue that he couldn't do anything with the pouch. I really was feeling better until about maybe 2-3 months ago. Now I notice I'm having slight dumping when I eat again, really foul gas, and I feel like I'm starving all the time.

So that's where I'm at. I'm hoping that this doctor next Friday can and will at least do the sclerotherapy to hold food in my pouch longer. Like I said I really feel the ROSE or stomafix would be the proper solution, but as insurance does not cover it yet it is not an option right now. Maybe further down the line it will be covered, but for right now this seems to be the only option. Does this help? Thanks for asking.

Sharon
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WLS 7/23/2002
Revision 4/25/2007
Sclerotherapy 8/15/2008
268/125.0/105-110
Highest/Current/Goal

Last edited by SDeRossett; 06-18-2008 at 04:07 PM.
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Old 06-18-2008, 09:32 PM   #9 (permalink)
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Egads, I'm so sorry Sharon...what a hellish experience! Yes, it's helpful (personally and I would think for others who are looking at long-term possible issues and such). I can only imagine the frustration and other big feelings you're enduring with this. Again, I'm sorry...and saddened to hear of your awful struggle. Since surgery you need won't be covered by insurance, and this second option is the only one available, I sure hope to hear that it WORKS. Fingers crossed tight

Complications and side effects can come at any time I've learned since finding TT, and it's ALWAYS good to know these things as I move further out. God forbid any of these various problems arise in my system, and knowing about others' difficulties is a sobering education. I'm sure you'll let the TT family know about your progress and the results of your treatment. And I'm praying that the fix will be perfect, even if it isn't the procedure you would prefer

Now isn't this just the sort of thing that a long-long term forum is helpful for? I say yes, but of course not in a way such as to say it's good, just helpful to be informed.

Bless you as you work on finding the solution to restore your health and to stop the awful effects of your current physiological state
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October, 2002 - Dr. Alan Newhoff, Arizona - My Hero!
5'8" - 300/129.5/140/145 - Working to regain to my FEEL GOOD weight!
(Highest/Current/My Goal/Dr. Goal)
Highest Size: 26/28
Current Size: 6/8
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Old 07-13-2008, 10:06 PM   #10 (permalink)
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Sharon... have you been to Kaye Bailey's Web Site? It's Living After Weight Loss Surgery. It's a free site with the best how-to information I've seen ANYwhere about our specific nutritional needs. She's the woman who devised the 5 Day Pouch Test which is there in it's entirety for anyone to use. It's geared toward teaching us how to eat in such a way as to eliminate carb craving while introducing highly nutritious foods that stave off hunger. It's the best thing that ever happened to me post-wls. Go take a look and read, read, read. Let me know what you think after a few trips there. It's a wonderfully supportive place as well. It's because of the LivingAfterWLS that I was able to lose my regain and find a pattern of eating to last a lifetime.
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