Quote:
Originally Posted by Marella
My fibro started also in my legs. I researched 'restless leg syndrome' a long time ago and thought it was that because my legs just wouldn't quiet down.
I first began noticing symptoms about 18 years ago, but it didn't mean anything until they escalated after I had my child and a C-section. Research told me that the trauma of the birth and my son's touchy first few days may have been what triggered my body pain. (I thought it was that I gave birth weighing 277). The pain really went wonky when my son was around 3. (I also thought it was because I maintained 250 pounds running around after a toddler). I was diagnosed officially about 2 years later.... ALL 18 pressure points. The worst is my neck and my legs. I've managed it with Tylenol, Ibuprofen, Aleve, and Celebrex in rotation, so as not to go crazy with Rx's I couldn't afford. I've also done heat management -- lot's of heat management. Hot towels, compresses, moist electric heat. It's temporary but helped.
OXY. Today is my first day without an Oxy in the night. I wish I wrote a journal to describe my pain for the last few days. I did so much (I'm house moving) and today my pain is soooo bad, I don't know where the aches are normal and where they are Fibro. My entire body, right down to my fingertips is twitching with mild pain. My back, shins and my neck are on fire.
If I can't get through this day with all that I had planned, I'll know that it's the Oxy that gave me my last week. (I built three walk-in closets, one coat closet, and put together 4 pieces of furniture - with one left to go. I also washed all the floors, did 10 loads of laundry, cleaned the new kitchen from top to bottom and inside, and vacuumed 6 rooms. Today I'm doing shelf-liners, lots of them. I consider it my day of rest since I'll be sitting and cutting half the time.) I'm pooped!
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Girl we are like twins. *lol* They, and I both, thought I had RLS for the longest. All the pain you describe is exactly what I live with constantly, and it's just unbearable. Totally off oxy, the pain in my legs is not tolerable. I cry, I stretch, I have panic attacks, I walk the floors, don't sleep, end up in the ER. It's insane. With the oxy, the pain in my legs is GREATLY reduced but my arms, lower back, and neck hurt a lot and the burning of my upper back, wow. I have it at least 5 times a week and take anti inflammatory meds by the handfulls (big reason I'm leaning toward the switch instead of GBS). I dunno. I've been told that the weightloss surgery won't have any effect on the fibromyalgia, so sometimes I think "well what's the point then?"... I just wish there was something more they could do for us.
Sounds like childbirth triggered your full blown fibro. Mine was triggered by the lap band surgery, depression of no aftercare, getting my masters and having to go back to america, breaking up with my boyfriend, new house, new job, and the 'RLS' got worse and worse til the dr sent me to a neurologist and he figured it out.
The cleaning is funny. The oxy does that at first. My first 2 months on oxy, I lost 45 lbs from walking back and forth to work everyday 3 miles. *grin* But you'll get used to it and it won't do it anymore. The oxy honeymoon lasts about 3 months. If it lasted forever, I would still be at my dream job and wouldn't know how to spell fibromyalgia.
But I'm not gonna cry....